An online survey of pelvic congestion support group members regarding comorbid symptoms and syndromes
dc.contributor.author | Smith, Steven J | |
dc.contributor.author | Sichlau, Michael | |
dc.contributor.author | Smith, B. Holly | |
dc.contributor.author | Sewall, Luke | |
dc.contributor.author | Chen, Brenda | |
dc.contributor.author | Khurana, Neal | |
dc.contributor.author | Rowe, Peter | |
dc.date.accessioned | 2023-11-10T19:11:11Z | |
dc.date.available | 2023-11-10T19:11:11Z | |
dc.date.issued | 2022-07-13 | |
dc.identifier.citation | Phlebology, 37, 8, 2022, 596-601 | en_US |
dc.identifier.uri | https://hdl.handle.net/2027.42/191428 | en |
dc.description.abstract | Objectives: Patients with pelvic congestion syndrome (PCS) often report overlapping somatic symptoms and syndromes. The objective of this study was to explore the prevalence of co-existing symptoms and self-reported syndrome diagnoses among women with PCS and to inform future research hypotheses. Methods: A brief online survey was offered to members of a PCS support group website. Responses were assessed for self-reported co-existing symptoms and formal diagnoses, including: chronic fatigue syndrome, fibromyalgia, postural tachycardia syndrome, irritable bowel syndrome, migraines, interstitial cystitis, and temporomandibular joint dysfunction. Results: Of a total of 6000 members, there were 398 respondents; 232 (59%) had not yet been treated for PCS. Among these, the most prevalent co-existing symptoms were as follows: severe fatigue (72%), dizziness (63%), IBS symptoms(61%), brain fog (33%), migraines (49%), polyuria or dysuria (41%), excessive sweating (31%), TMJ pain (31%), and loose skin or lax joints (18%). These are much higher than reported for the general female population. The most commonly self-reported comorbid syndrome diagnoses for the overall group of 398 were: irritable bowel syndrome (29%), fibromyalgia (13%), spinal nerve problems (18%), interstitial cystitis (10%), postural tachycardia syndrome (9%), hypertension (11%), chronic fatigue syndrome (10%), and Ehlers-Danlos syndrome (6%). Other than with hypertension, these rates are variably higher than in the general population. Conclusion: Several self-reported co-existing symptoms and syndromes are more prevalent in members of a PCS support group relative to the reported prevalence in the general population. More formal investigation is warranted to evaluate this finding and to investigate potential etiologic links. Ehlers-Danlos Syndrome appears to be common in self identifying PCS women. | en_US |
dc.language.iso | en_US | en_US |
dc.publisher | Sage | en_US |
dc.subject | chronic pelvic pain | en_US |
dc.subject | Ehlers-Danlos syndrome | en_US |
dc.subject | POTS | en_US |
dc.subject | medical support groups | en_US |
dc.title | An online survey of pelvic congestion support group members regarding comorbid symptoms and syndromes | en_US |
dc.type | Article | en_US |
dc.subject.hlbsecondlevel | Anthropology and Archaeology | |
dc.subject.hlbtoplevel | Social Sciences | |
dc.description.peerreviewed | Peer Reviewed | en_US |
dc.contributor.affiliationother | Vascular and Interventional Professionals, LLC, Hinsdale, IL, USA | en_US |
dc.contributor.affiliationother | Vascular and Interventional Professionals, LLC, Hinsdale, IL, USA | en_US |
dc.contributor.affiliationother | Center for the Advanced Study of Human Paleobiology, George Washington University, Washington, DC, USA | en_US |
dc.contributor.affiliationother | Vascular and Interventional Professionals, LLC, Hinsdale, IL, USA | en_US |
dc.contributor.affiliationother | Touro University California, Vallejo, CA | en_US |
dc.contributor.affiliationother | Vascular and Interventional Specialists of Siouxland, Dakota Dunes, ND, USA | en_US |
dc.contributor.affiliationother | Dept of Pediatrics, Johns Hopkins University, Baltimore, MD, USA | en_US |
dc.contributor.affiliationumcampus | Ann Arbor | en_US |
dc.description.bitstreamurl | http://deepblue.lib.umich.edu/bitstream/2027.42/191428/1/SmithSJ 2023 Phl. Facebook survey PeVD.pdf | |
dc.identifier.doi | https://doi.org/10.1177/02683555221112567 | |
dc.identifier.doi | https://dx.doi.org/10.7302/21714 | |
dc.identifier.source | Phlebology | en_US |
dc.identifier.orcid | 0000-0002-3369-4534 | en_US |
dc.identifier.orcid | 0000-0002-8064-7810 | en_US |
dc.identifier.orcid | 0000-0001-5126-5445 | en_US |
dc.identifier.orcid | 0000-0002-3586-2677 | en_US |
dc.description.filedescription | Description of SmithSJ 2023 Phl. Facebook survey PeVD.pdf : Main article | |
dc.description.depositor | SELF | en_US |
dc.identifier.name-orcid | Smith, Steven J; 0000-0002-3369-4534 | en_US |
dc.identifier.name-orcid | Sichlau, Michael; 0000-0002-8064-7810 | en_US |
dc.identifier.name-orcid | Smith, B. Holly; 0000-0001-5126-5445 | en_US |
dc.identifier.name-orcid | Rowe, Peter; 0000-0002-3586-2677 | en_US |
dc.working.doi | 10.7302/21714 | en_US |
dc.owningcollname | Anthropology, Department of |
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