DNA-Sequence Patenting: National Society of Genetic Counselors (NSGC) Position Paper
dc.contributor.author | Yesley, Anne | en_US |
dc.contributor.author | McIntosh, Nathalie | en_US |
dc.contributor.author | Braddock, Bonnie R. | en_US |
dc.contributor.author | Branda, Kelly J. | en_US |
dc.contributor.author | Eanet, Karen | en_US |
dc.contributor.author | Goldberg, Simon | en_US |
dc.contributor.author | Kieffer, Stephanie A. | en_US |
dc.contributor.author | Primiano, Lisa | en_US |
dc.contributor.author | Quercia, Nada | en_US |
dc.contributor.author | Taylor, Kelly A. | en_US |
dc.contributor.author | Tsipis, Judith | en_US |
dc.contributor.author | Yashar, Beverly M. | en_US |
dc.date.accessioned | 2006-09-11T15:26:35Z | |
dc.date.available | 2006-09-11T15:26:35Z | |
dc.date.issued | 2002-08 | en_US |
dc.identifier.citation | McIntosh, Nathalie; Braddock, Bonnie R.; Branda, Kelly J.; Eanet, Karen; Goldberg, Simon; Kieffer, Stephanie A.; Primiano, Lisa; Quercia, Nada; Taylor, Kelly A.; Tsipis, Judith; Yashar, Beverly M.; Yesley, Anne; (2002). "DNA-Sequence Patenting: National Society of Genetic Counselors (NSGC) Position Paper." Journal of Genetic Counseling 11(4): 241-243. <http://hdl.handle.net/2027.42/44919> | en_US |
dc.identifier.issn | 1059-7700 | en_US |
dc.identifier.issn | 1573-3599 | en_US |
dc.identifier.uri | https://hdl.handle.net/2027.42/44919 | |
dc.identifier.uri | http://www.ncbi.nlm.nih.gov/sites/entrez?cmd=retrieve&db=pubmed&list_uids=12735296&dopt=citation | en_US |
dc.description.abstract | In November 2000, the Genetic Services Committee of the National Society of Genetic Counselors (NSGC) convened a working group to draft a position paper on patenting of DNA-sequences. The mandate of the group was to produce general position statements that support the perspective and needs of consumers of DNA-based genetic tests and therapies (our patients and their families) and participants in DNA-based genetic research. After review and discussion of the literature on DNA-sequence patenting issues, the working group drafted position statement points that support current United States Patent and Trademark Office (USPTO) guidelines; broad licensing of DNA-sequence patents; nonenforcement of DNA-sequence patents in noncommercial research; reasonable royalty rates; an informed consent process for research participants that discloses whether they can share in any financial rewards relating to the project; the development of guidelines for licensing of DNA-sequence patents; and the establishment of oversight organizations to monitor licensing of DNA-sequence patents. These position statements were approved by the NSGC Board of Directors in the fall of 2001. | en_US |
dc.format.extent | 14269 bytes | |
dc.format.extent | 3115 bytes | |
dc.format.mimetype | application/pdf | |
dc.format.mimetype | text/plain | |
dc.language.iso | en_US | |
dc.publisher | Kluwer Academic Publishers-Plenum Publishers; National Society of Genetic Counselors, Inc. ; Springer Science+Business Media | en_US |
dc.subject.other | Royalties | en_US |
dc.subject.other | Genetic Therapies | en_US |
dc.subject.other | Position Paper | en_US |
dc.subject.other | Public Health/Gesundheitswesen | en_US |
dc.subject.other | Patenting | en_US |
dc.subject.other | Ethics | en_US |
dc.subject.other | Biomedicine | en_US |
dc.subject.other | Human Genetics | en_US |
dc.subject.other | Gynecology | en_US |
dc.subject.other | Clinical Psychology | en_US |
dc.subject.other | DNA-sequence | en_US |
dc.subject.other | Licensing | en_US |
dc.subject.other | Genetic Testing | en_US |
dc.subject.other | National Society of Genetic Counselors (NSGC) | en_US |
dc.title | DNA-Sequence Patenting: National Society of Genetic Counselors (NSGC) Position Paper | en_US |
dc.type | Article | en_US |
dc.subject.hlbsecondlevel | Genetics | en_US |
dc.subject.hlbtoplevel | Science | en_US |
dc.subject.hlbtoplevel | Health Sciences | en_US |
dc.description.peerreviewed | Peer Reviewed | en_US |
dc.contributor.affiliationum | Department of Ophthalmology and Visual Sciences, University of Michigan, Ann Arbor, Michigan | en_US |
dc.contributor.affiliationother | Greater Baltimore Medical Center, Harvey Institute of Human Genetics, Baltimore, Maryland | en_US |
dc.contributor.affiliationother | Department of Biology, Brandeis University, Waltham, Massachusetts | en_US |
dc.contributor.affiliationother | Clinical Genetics, University of Alberta Hospital, Edmonton, Canada | en_US |
dc.contributor.affiliationother | Division of Clinical and Metabolic Genetics, Hospital for Sick Children, Toronto, Canada | en_US |
dc.contributor.affiliationother | Office of Technology Licensing, Stanford University, Palo Alto, California | en_US |
dc.contributor.affiliationother | Section of Genetics, Upstate Medical University, Syracuse, New York | en_US |
dc.contributor.affiliationother | Department of Biology, Brandeis University, Waltham, Massachusetts | en_US |
dc.contributor.affiliationother | Dana Farber Cancer Institute, Boston, Massachusetts | en_US |
dc.contributor.affiliationother | American Medical Association, Chicago, Illinois | en_US |
dc.contributor.affiliationother | Department of Molecular Physiology and Biophysics, Vanderbilt University, Nashville, Tennessee | en_US |
dc.contributor.affiliationother | Athena Diagnostics, Inc., Worcester, Massachusetts | en_US |
dc.contributor.affiliationumcampus | Ann Arbor | en_US |
dc.identifier.pmid | 12735296 | en_US |
dc.description.bitstreamurl | http://deepblue.lib.umich.edu/bitstream/2027.42/44919/1/10897_2004_Article_375456.pdf | en_US |
dc.identifier.doi | http://dx.doi.org/10.1023/A:1016374314605 | en_US |
dc.identifier.source | Journal of Genetic Counseling | en_US |
dc.owningcollname | Interdisciplinary and Peer-Reviewed |
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