The Interface Between the Practice of Medical Genetics and Human Genetic Research: What Every Genetic Counselor Needs to Know
dc.contributor.author | Yashar, Beverly M. | en_US |
dc.contributor.author | Markel, Dorene S. | en_US |
dc.date.accessioned | 2006-09-11T15:26:53Z | |
dc.date.available | 2006-09-11T15:26:53Z | |
dc.date.issued | 2004-10 | en_US |
dc.identifier.citation | Markel, Dorene S.; Yashar, Beverly M.; (2004). "The Interface Between the Practice of Medical Genetics and Human Genetic Research: What Every Genetic Counselor Needs to Know." Journal of Genetic Counseling 13(5): 351-368. <http://hdl.handle.net/2027.42/44922> | en_US |
dc.identifier.issn | 1059-7700 | en_US |
dc.identifier.issn | 1573-3599 | en_US |
dc.identifier.uri | https://hdl.handle.net/2027.42/44922 | |
dc.identifier.uri | http://www.ncbi.nlm.nih.gov/sites/entrez?cmd=retrieve&db=pubmed&list_uids=15604636&dopt=citation | en_US |
dc.description.abstract | Genetic counselors have historically used human genetic research as an advanced information resource for their patients. Most commonly, this has been via access to information provided by gene identification studies in advance of commercial testing. More recently genetic counselors have been participating in human genetic research studies as part of the investigative team. This review provides a framework to help genetic counselors in research and clinical practice understand the historical perspectives, ethical principles, and federal regulations that govern the current practice of human subject research. Special consideration is given to∼the IRB process and unique issues in human genetic research. This overview is intended to help improve the ability of genetic counselors to act as advocates for their patients. | en_US |
dc.format.extent | 228076 bytes | |
dc.format.extent | 3115 bytes | |
dc.format.mimetype | application/pdf | |
dc.format.mimetype | text/plain | |
dc.language.iso | en_US | |
dc.publisher | Kluwer Academic Publishers-Plenum Publishers; National Society of Genetic Counselors, Inc. ; Springer Science+Business Media | en_US |
dc.subject.other | Ethics | en_US |
dc.subject.other | Institutional Review Board (IRB) | en_US |
dc.subject.other | Genetic Research | en_US |
dc.subject.other | Public Health/Gesundheitswesen | en_US |
dc.subject.other | Biomedicine | en_US |
dc.subject.other | Human Genetics | en_US |
dc.subject.other | Ethics | en_US |
dc.subject.other | Gynecology | en_US |
dc.subject.other | Clinical Psychology | en_US |
dc.subject.other | Human Subject Research | en_US |
dc.subject.other | Belmont Report | en_US |
dc.subject.other | Genetic Counseling | en_US |
dc.subject.other | Genetic Counselor | en_US |
dc.subject.other | Research Regulations | en_US |
dc.title | The Interface Between the Practice of Medical Genetics and Human Genetic Research: What Every Genetic Counselor Needs to Know | en_US |
dc.type | Article | en_US |
dc.subject.hlbsecondlevel | Genetics | en_US |
dc.subject.hlbtoplevel | Science | en_US |
dc.subject.hlbtoplevel | Health Sciences | en_US |
dc.description.peerreviewed | Peer Reviewed | en_US |
dc.contributor.affiliationum | Center for the Advancement of Clinical Research, Department of Medical School Administration, University of Michigan, Ann Arbor, Michigan | en_US |
dc.contributor.affiliationum | Departments of Human Genetics and Ophthalmology and Visual Sciences, University of Michigan, Ann Arbor, Michigan | en_US |
dc.contributor.affiliationumcampus | Ann Arbor | en_US |
dc.identifier.pmid | 15604636 | en_US |
dc.description.bitstreamurl | http://deepblue.lib.umich.edu/bitstream/2027.42/44922/1/10897_2004_Article_NY00000403.pdf | en_US |
dc.identifier.doi | http://dx.doi.org/10.1023/B:JOGC.0000044198.19298.e2 | en_US |
dc.identifier.source | Journal of Genetic Counseling | en_US |
dc.owningcollname | Interdisciplinary and Peer-Reviewed |
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