Survey of professionals' expectations of developmental task achievement of cystic fibrosis self-care in children
dc.contributor.author | Patton, Susana R. | en_US |
dc.contributor.author | Graham, Julie L. | en_US |
dc.contributor.author | Holsclaw, Douglas | en_US |
dc.contributor.author | Varlotta, Laurie | en_US |
dc.date.accessioned | 2006-09-20T15:03:20Z | |
dc.date.available | 2006-09-20T15:03:20Z | |
dc.date.issued | 2005-08 | en_US |
dc.identifier.citation | Patton, Susana R.; Graham, Julie L.; Holsclaw, Douglas; Varlotta, Laurie (2005)."Survey of professionals' expectations of developmental task achievement of cystic fibrosis self-care in children." Pediatric Pulmonology 40(2): 135-140. <http://hdl.handle.net/2027.42/48705> | en_US |
dc.identifier.issn | 8755-6863 | en_US |
dc.identifier.issn | 1099-0496 | en_US |
dc.identifier.uri | https://hdl.handle.net/2027.42/48705 | |
dc.identifier.uri | http://www.ncbi.nlm.nih.gov/sites/entrez?cmd=retrieve&db=pubmed&list_uids=15965899&dopt=citation | en_US |
dc.description.abstract | We surveyed 174 professionals with at least 6 months of experience working with children and adolescents with cystic fibrosis (CF), to obtain estimates of ages at which 50% of children with CF may be able to perform each of 44 self-care behaviors related to the treatment of CF. Respondents were 63 physicians, 36 nurses, 24 dietitians, 18 respiratory therapists, 17 nurse practitioners, 10 social workers, and 4 psychologists, who had a mean of 11.4 years (SD = 7.5) of experience working with pediatric patients with CF. Mean age estimates for self-care behaviors ranged from 5.5–13.9 years. For each item, responses varied among respondents, as reflected by a mean standard deviation of 2.75 years for all behaviors. Analyses of concordance suggested a high level of agreement among respondents for the order of mastery of specific skills related to diet and enzymes use only. To date, there are no empirically defined age estimates for when children with CF may be able to perform specific self-care behaviors involved in the management of CF. This survey is the first step in generating age estimates for self-care independence in CF. Future research should conduct an objective assessment of children's CF knowledge and skill in performing these behaviors, and compare these findings to the age estimates offered in this study. Pediatr Pulmonol. 2005; 40:135–140. © 2005 Wiley-Liss, Inc. | en_US |
dc.format.extent | 62925 bytes | |
dc.format.extent | 3118 bytes | |
dc.format.mimetype | application/pdf | |
dc.format.mimetype | text/plain | |
dc.language.iso | en_US | |
dc.publisher | Wiley Subscription Services, Inc., A Wiley Company | en_US |
dc.subject.other | Life and Medical Sciences | en_US |
dc.subject.other | Miscellaneous Medical | en_US |
dc.title | Survey of professionals' expectations of developmental task achievement of cystic fibrosis self-care in children | en_US |
dc.type | Article | en_US |
dc.rights.robots | IndexNoFollow | en_US |
dc.subject.hlbsecondlevel | Pediatrics | en_US |
dc.subject.hlbtoplevel | Health Sciences | en_US |
dc.description.peerreviewed | Peer Reviewed | en_US |
dc.contributor.affiliationum | Division of Child Behavioral Health, University of Michigan Health System and C.S. Mott Children's Hospital, Ann Arbor, Michigan ; Department of Clinical and Health Psychology, M.C.P. Hahnemann University, Philadelphia, Pennsylvania ; Division of Child Behavioral Health, University of Michigan Health System and C.S. Mott Children's Hospital, 1924 Taubman Center, 1500 East Medical Center Drive, Ann Arbor, MI 48109-0318. | en_US |
dc.contributor.affiliationother | Department of Clinical and Health Psychology, M.C.P. Hahnemann University, Philadelphia, Pennsylvania | en_US |
dc.contributor.affiliationother | Division of Pulmonary, Allergy, and Critical Care, Presbyterian Medical Center, University of Pennsylvania Health System, Philadelphia, Pennsylvania | en_US |
dc.contributor.affiliationother | Division of Pulmonology and Allergy, St. Christopher's Hospital for Children, Philadelphia, Pennsylvania | en_US |
dc.identifier.pmid | 15965899 | en_US |
dc.description.bitstreamurl | http://deepblue.lib.umich.edu/bitstream/2027.42/48705/1/20262_ftp.pdf | en_US |
dc.identifier.doi | http://dx.doi.org/10.1002/ppul.20262 | en_US |
dc.identifier.source | Pediatric Pulmonology | en_US |
dc.owningcollname | Interdisciplinary and Peer-Reviewed |
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