Ventilator Dependency in ALS: Management, Disease Progression, and Issues of Coping
dc.contributor.author | Bromberg, Mark | en_US |
dc.contributor.author | Forshew, Dallas | en_US |
dc.contributor.author | Iaderosa, Sandra | en_US |
dc.contributor.author | McDonald, Evelyn | en_US |
dc.date.accessioned | 2010-04-14T13:49:06Z | |
dc.date.available | 2010-04-14T13:49:06Z | |
dc.date.issued | 1996 | en_US |
dc.identifier.citation | Bromberg, Mark; Forshew, Dallas; Iaderosa, Sandra; McDonald, Evelyn (1996). "Ventilator Dependency in ALS: Management, Disease Progression, and Issues of Coping." Neurorehabilitation and Neural Repair 10(3): 195-199. <http://hdl.handle.net/2027.42/68609> | en_US |
dc.identifier.issn | 1545-9683 | en_US |
dc.identifier.uri | https://hdl.handle.net/2027.42/68609 | |
dc.description.abstract | The natural progression of amyotrophic lateral sclerosis (ALS) leads to respiratory fail ure and death. Artificial ventilation can prolong the course, leading to extreme degrees of weakness and dependence. Little specific information is available to counsel ALS patients about making the decision for artificial ventilation. In order to gain more infor mation, we visited four ventilator-dependent ALS patients and their primary caregivers. We determined the neurologic state and level of function of the patients and inter viewed their primary caregivers to assess medical care and management needs (both social and financial) and how they were being met. We also administrated question naires to assess the psychological well-being of both patient and primary caregiver and how the relationship between the patient and primary caregiver changed under these circumstances. Key Words: ALS—Artificial ventilation—Disease progression. | en_US |
dc.format.extent | 3108 bytes | |
dc.format.extent | 456871 bytes | |
dc.format.mimetype | text/plain | |
dc.format.mimetype | application/pdf | |
dc.publisher | Sage Publications | en_US |
dc.title | Ventilator Dependency in ALS: Management, Disease Progression, and Issues of Coping | en_US |
dc.type | Article | en_US |
dc.subject.hlbsecondlevel | Neurosciences | en_US |
dc.subject.hlbtoplevel | Health Sciences | en_US |
dc.description.peerreviewed | Peer Reviewed | en_US |
dc.contributor.affiliationum | Department of Social Work, University of Michigan, Ann Arbor, Michigan | en_US |
dc.contributor.affiliationother | Department of Neurology, University of Utah, Salt Lake City, Utah | en_US |
dc.contributor.affiliationother | Department of Neurology, University of Utah, Salt Lake City, Utah | en_US |
dc.contributor.affiliationother | Department of Research and Education, The New Road Map Foundation, Seattle, Washington | en_US |
dc.description.bitstreamurl | http://deepblue.lib.umich.edu/bitstream/2027.42/68609/2/10.1177_154596839601000306.pdf | |
dc.identifier.doi | 10.1177/154596839601000306 | en_US |
dc.identifier.source | Neurorehabilitation and Neural Repair | en_US |
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dc.owningcollname | Interdisciplinary and Peer-Reviewed |
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