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Silent no more! The lived experiences of women with lichen sclerosis

dc.contributor.authorWehbe‐alamah, Hibaen_US
dc.contributor.authorKornblau, Barbara L.en_US
dc.contributor.authorHaderer, JoAnnen_US
dc.contributor.authorErickson, Janetlynneen_US
dc.date.accessioned2012-08-09T14:56:59Z
dc.date.available2013-10-01T17:06:32Zen_US
dc.date.issued2012-08en_US
dc.identifier.citationWehbe‐alamah, Hiba ; Kornblau, Barbara L.; Haderer, JoAnn; Erickson, Janetlynne (2012). "Silent no more! The lived experiences of women with lichen sclerosis." Journal of the American Academy of Nurse Practitioners 24(8). <http://hdl.handle.net/2027.42/92447>en_US
dc.identifier.issn1041-2972en_US
dc.identifier.issn1745-7599en_US
dc.identifier.urihttps://hdl.handle.net/2027.42/92447
dc.description.abstractPurpose: Lichen Sclerosis (LS) is an often unrecognized and misdiagnosed chronic inflammatory skin condition of the anogenital area that affects quality of life, bringing severe discomfort and distress to affected men, women, and children. The purpose of this qualitative study is to explore the lived experiences of women with LS. Data sources: Content analysis was conducted of data obtained from three public online forums/blogs used by women with LS. A total of 527 postings/entries were analyzed for patterns and themes by four researchers. Conclusions: Five core themes emerged as a result of this study, revealing feelings of frustration and despair stemming from healthcare providers' lack of knowledge in relation to Lichen Sclerosis, often leading to misdiagnosis, prolonged suffering, and an altered quality of life. Implications for practice: Knowledgeable healthcare providers and additional research into the cause, treatment, and cure of Lichen Sclerosis are needed. Advance‐practice nurses stand to play an important role in the areas of education, research, policy making, and clinical practice to advocate for and empower women with LS.en_US
dc.publisherBlackwell Publishing Incen_US
dc.publisherWiley Periodicals, Inc.en_US
dc.subject.otherInternet Blogsen_US
dc.subject.otherResearchen_US
dc.subject.otherContent Analysisen_US
dc.subject.otherWomen's Healthen_US
dc.subject.otherQualityen_US
dc.subject.otherAnogenital Inflammationen_US
dc.titleSilent no more! The lived experiences of women with lichen sclerosisen_US
dc.typeArticleen_US
dc.rights.robotsIndexNoFollowen_US
dc.subject.hlbsecondlevelNursingen_US
dc.subject.hlbtoplevelHealth Sciencesen_US
dc.description.peerreviewedPeer Revieweden_US
dc.contributor.affiliationumDepartment of Nursing, School of Health Professions and Studies, University of Michigan‐Flint, Flint, Michiganen_US
dc.identifier.pmid22845033en_US
dc.description.bitstreamurlhttp://deepblue.lib.umich.edu/bitstream/2027.42/92447/1/j.1745-7599.2012.00715.x.pdf
dc.identifier.doi10.1111/j.1745-7599.2012.00715.xen_US
dc.identifier.sourceJournal of the American Academy of Nurse Practitionersen_US
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dc.owningcollnameInterdisciplinary and Peer-Reviewed


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