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Validation of the parent-proxy pediatric Charcot-Marie-Tooth disease quality of life outcome measure Wu, Tong Tong; Finkel, Richard S.; Siskind, Carly E.; Feely, Shawna M.E.; Burns, Joshua; Reilly, Mary M.; Muntoni, Francesco; Estilow, Timothy; Shy, Michael E.; Ramchandren, Sindhu (Wiley Periodicals, Inc., 2023-06)