Show simple item record

Localizing chronic disease management: Information work and health translations

dc.contributor.authorKaziunas, Elizabethen_US
dc.contributor.authorAckerman, Mark S.en_US
dc.contributor.authorVeinot, Tiffany C.E.en_US
dc.date.accessioned2014-05-23T15:59:50Z
dc.date.available2014-05-23T15:59:50Z
dc.date.issued2013en_US
dc.identifier.citationKaziunas, Elizabeth; Ackerman, Mark S.; Veinot, Tiffany C.E. (2013). "Localizing chronic disease management: Information work and health translations." Proceedings of the American Society for Information Science and Technology 50(1): 1-10. <http://hdl.handle.net/2027.42/106960>en_US
dc.identifier.issn0044-7870en_US
dc.identifier.issn1550-8390en_US
dc.identifier.urihttps://hdl.handle.net/2027.42/106960
dc.description.abstractBased on interviews with people who had diabetes, high blood pressure, and kidney disease in Flint, Michigan, we found people actively doing information work to manage their health in the face of poverty, potentially violent conditions, high stress, and a distrust of institutionalized medicine. More specifically, we observed people translating information into the context of their everyday lives. We present various translations of health information in the form of local strategies for chronic illness management. Study findings highlight initial implications to support health information services on a community level.en_US
dc.publisherWiley Subscription Services, Inc., A Wiley Companyen_US
dc.titleLocalizing chronic disease management: Information work and health translationsen_US
dc.typeArticleen_US
dc.rights.robotsIndexNoFollowen_US
dc.subject.hlbsecondlevelInformation and Library Scienceen_US
dc.subject.hlbtoplevelSocial Sciencesen_US
dc.description.peerreviewedPeer Revieweden_US
dc.contributor.affiliationumSchool of Information, University of Michigan, 4370 North Quad, 105 S. State Street, Ann Arbor, MI, USA 48109‐1285en_US
dc.description.bitstreamurlhttp://deepblue.lib.umich.edu/bitstream/2027.42/106960/1/14505001090_ftp.pdf
dc.identifier.doi10.1002/meet.14505001090en_US
dc.identifier.sourceProceedings of the American Society for Information Science and Technologyen_US
dc.identifier.citedreferenceSubramanian, S. V., Chen, J. T., Rehkopf, D. H., Waterman, P. D.,& Krieger, N.K. ( 2005 ). Racial disparities in context: a multilevel analysis of neighborhood variations in poverty and excess mortality among black populations in Massachusetts. Am J Public Health, 95 ( 2 ), 260 – 265.en_US
dc.identifier.citedreferenceShutz, A. and Luckmann, T. ( 1973 ). Structures of the life‐world, vol. 1. Evanston: Northwestern University Press.en_US
dc.identifier.citedreferenceSmiley, M.J., Diez Roux, A.V., Brines, S.J., Brown, D.G., Evenson, K.R.,& Rodrigues, D.A. ( 2010 ). A spatial analysis of health‐related resources in three diverse metropolitan areas. Health Place, 16 ( 5 ), 885 – 892.en_US
dc.identifier.citedreferenceSouden, M. and Durrance, J. ( 2011 ). Information use in chronic illness care. Proc ASIST&T 2011, 1 – 10.en_US
dc.identifier.citedreferenceStraus, S.E., Tetroe, J., Graham, I.D. ( 2009 ). Knowledge translation in health care. Hoboken: Wiley‐Blackwell.en_US
dc.identifier.citedreferenceStrauss, A.L. ( 1993 ). Continual Permutations of Action. New York: Aldine de Gruyter.en_US
dc.identifier.citedreferenceStrauss, A.,& Corbin, J. ( 1998 ). Basics of Qualitative Research. Newbury Park: Sage.en_US
dc.identifier.citedreferenceTaylor, R. S. ( 1991 ). Information use environments.In B. Dervin & M. J. Voigt (Eds.), Progress in communication sciences (pp. 217 – 255 ). Norwood, NJ: Ablex Publishing.en_US
dc.identifier.citedreferenceToman, C., Harrison, M.B.,& Logan, J. ( 2001 ). Clinical practice guidelines. Patient Educ Couns., 42 ( 3 ), 297 – 287.en_US
dc.identifier.citedreferenceU.S. Census Bureau.( 2013 ). State and County QuickFacts.Retrieved August 3, 2013 from http://quickfacts.census.gov/qfd/states/26/2629000.htmlen_US
dc.identifier.citedreferenceUnited States Renal System.( 2011 ). 2010 annual data report: Atlas. Bethesda: The National Institute of Health.en_US
dc.identifier.citedreferenceVeinot, T.C. ( 2013 ). Regional HIV/AIDS information environments and information acquisition success. The Information Society, 29 ( 2 ), 88 – 112.en_US
dc.identifier.citedreferenceVeinot, T. C., Campbell, T. R., Kruger, D. J.,& Grodzinski, A. ( 2013 ). A question of trust: user‐centered design requirements for an informatics intervention to promote the sexual health of African‐American youth. J Am Med Inform Assoc, 20 ( 4 ): 758 – 65.en_US
dc.identifier.citedreferenceVeinot, T. C., Meadowbrooke, C., Newman, M. W., Zheng, K.,& Perry, E. E. ( 2009 ). Routines that ease the pain: The information world of a dialysis clinic. Proc ASIS&T 2009.en_US
dc.identifier.citedreferenceWard, V., Smith, S., House, A.,& Hamer, S. ( 2012 ). Exploring knowledge exchange: A useful framework for practice and policy. Soc Sci Med, 74 ( 3 ), 297 – 304.en_US
dc.identifier.citedreferenceWeiner, C., Fagerhaugh, S., Suczek, B. and Strauss, A. L. ( 1997 ). Social organization of medical work. New Brunswick: Transaction Publishers.en_US
dc.identifier.citedreferenceYerger, V. B., Przewoznik, J.,& Malone, R. E. ( 2007 ). Radicalized geography, corporate activity, and health disparities: tobacco industry targeting of inner cities. J Health Care Poor Underserved, 18 ( 4 Suppl ), 10 – 38.en_US
dc.identifier.citedreferenceAcevedo‐Garcia, D., Lochner, K. A., Osypuk, T. L.,& Subramanian, S. V. ( 2003 ). Future directions in residential segregation and health research. Am J Public Health, 93 ( 2 ), 215 – 221.en_US
dc.identifier.citedreferenceAgency for Healthcare Research and Quality.( 2010 ). 2009 National Healthcare Disparities Report.Retrieved from http://www.ahrq.gov/qual/nhdr09/nhdr09.pdfen_US
dc.identifier.citedreferenceBeaulac, J., Kristjansson, E.,& Cummins, S. ( 2009 ). A systematic review of food deserts. Prev Chronic Dis, 6 ( 3 ), A105.en_US
dc.identifier.citedreferenceBerke, E. M., Tanski, S.E., Demidenko, E., Alford‐Teaster, J., Shi, X.,& Sargent, J.D. ( 2010 ). Alcohol retail density and demographic predictors of health disparities. Am J Public Health, 100 ( 10 ): 1967 – 71.en_US
dc.identifier.citedreferenceCase, D.O. ( 2012 ). Looking for information. Orlando, FL: Academic Press.en_US
dc.identifier.citedreferenceCenters for Disease Control and Prevention.( 2011 ). CDC Health disparities and inequalities report—United States, 2011,. MMWR, 60, 1 – 113.en_US
dc.identifier.citedreferenceCharmaz, K. ( 1991 ). Good days, bad days: The self in chronic illness and time. New Brunswick, NJ: Rutgers.en_US
dc.identifier.citedreferenceChatman, E. ( 1999 ). A theory of life in the round. JASIST, 50 ( 3 ), 207 – 217.en_US
dc.identifier.citedreferenceChivu, C. & Reidpath, D. ( 2010 ). Social deprivation & exposure to health promotion. BMC Public Health, 10, 473.en_US
dc.identifier.citedreferenceCorbin, J.M. & Strauss, A.L. ( 1985 ). Managing chronic illness at home: Three lines of work. Qual Sociol, 8 ( 3 ), 224 – 247.en_US
dc.identifier.citedreferenceCorbin, J.M. & Strauss, A.L. ( 1989 ). Unending work and care: Managing chronic illness at home. San Francisco: Jossey‐Bass.en_US
dc.identifier.citedreferenceDahmann, N., Wolch, J., Joassart‐Marcelli, P., Reynolds, K.,& Jerrett, M.,( 2010 ). The active city? Disparities in provision of urban public recreation resources. Health Place, 16 ( 3 ), 431 – 445.en_US
dc.identifier.citedreferenceFervers, B., Burgers, J.S., Haugh, M., Latreille, J., Mlika‐Cabanne, N., Paquet, L.,et al.( 2006 ). Adaption of clinical guidelines. Intl J Quality Health Care, 18 ( 3 ), 167 – 176.en_US
dc.identifier.citedreferenceGraham, I.D., Logan, J., Harrison, M.B., Straus, S.E., Tetroe, J., Caswell, W. ( 2006 ). Lost in knowledge translation: Time for a map? J Contin Educ Health, 26 ( 1 ), 13 – 24.en_US
dc.identifier.citedreferenceHarrison, M.B., Graham, I.D.,& Fervers, B. ( 2009 ). Adapting knowledge to a local context.In S.E. Straus, J. Tetroe & I.D. Graham (Eds.), Knowledge translation in health care: Moving from evidence to practice (pp. 73 – 82 ). West Sussex, UK: Blackwell.en_US
dc.identifier.citedreferenceHogan, T. and Palmer, C. ( 2005 ). “Information Work” and chronic illness. Proc ASIST 2005: 150 – 69.en_US
dc.identifier.citedreferenceIceland, J.,& Nelson, K. A. ( 2008 ). Hispanic segregation in metropolitan America. Am Sociol Rev, 73 ( 5 ), 741 – 765.en_US
dc.identifier.citedreferenceJaeger and Burnett ( 2010 ). Information worlds: Social context, technology, and information behavior in the age of the internet. New York, NY: Routledge.en_US
dc.identifier.citedreferenceLee, B. A., Reardon, S. F., Firebaugh, G., Farrell, C. R., Matthews, S. A.,& O'Sullivan, D. ( 2008 ). Beyond the census tract. Am Sociol Rev, 73 ( 5 ), 766 – 791.en_US
dc.identifier.citedreferenceLievrouw, L. A. ( 2001 ). New media and the ‘pluralization of life‐worlds’. New Media & Society, 3 ( 1 ), 7 – 28.en_US
dc.identifier.citedreferenceLuckmann, B. ( 1970 ). The small life‐worlds of modern man. Social Research, 37, 580 – 596.en_US
dc.identifier.citedreferenceNational Minority Quality Forum.( 2012 ). U.S. Diabetes Index.Retrieved on April 30, 2013 from http://diabetesresearchtool.com/en_US
dc.identifier.citedreferenceNewman, K. ( 200 ). A different shade of gray: Midlife and beyond in the inner city. New York: The New Press.en_US
dc.identifier.citedreferenceRose, K.M., Suchindran, C.M., Foraker, R.E., Whitsel, E.A., Rosamond, W.D., Heiss, G. ( 2009 ). Neighborhood disparities in incident hospitalized myocardial infarction in four U.S. communities. Ann Epidemiol, 19 ( 12 ), 867 – 74.en_US
dc.identifier.citedreferenceSchootman, M., Andresen, E., Wolinsky, F., Malmstrom, T., Miller, J., Yan, Y. ( 2007 ). The effect of adverse housing and neighborhood conditions on the development of diabetes mellitus among middle‐aged African Americans. Am J Epidemiol, 166 ( 4 ), 379 – 387.en_US
dc.identifier.citedreferenceShea, B.J. ( 2011 ). A decade of knowledge translation research—what has changed? J Clin Epidemiol, 64 ( 1 ), 3 – 5.en_US
dc.owningcollnameInterdisciplinary and Peer-Reviewed


Files in this item

Show simple item record

Remediation of Harmful Language

The University of Michigan Library aims to describe its collections in a way that respects the people and communities who create, use, and are represented in them. We encourage you to Contact Us anonymously if you encounter harmful or problematic language in catalog records or finding aids. More information about our policies and practices is available at Remediation of Harmful Language.

Accessibility

If you are unable to use this file in its current format, please select the Contact Us link and we can modify it to make it more accessible to you.