Show simple item record

Stress and Resilience for Parents of Children With Intellectual and Developmental Disabilities: A Review of Key Factors and Recommendations for Practitioners

dc.contributor.authorPeer, Justin W.en_US
dc.contributor.authorHillman, Stephen B.en_US
dc.date.accessioned2014-07-03T14:41:40Z
dc.date.availableWITHHELD_12_MONTHSen_US
dc.date.available2014-07-03T14:41:40Z
dc.date.issued2014-06en_US
dc.identifier.citationPeer, Justin W.; Hillman, Stephen B. (2014). "Stress and Resilience for Parents of Children With Intellectual and Developmental Disabilities: A Review of Key Factors and Recommendations for Practitioners." Journal of Policy and Practice in Intellectual Disabilities (2): 92-98.en_US
dc.identifier.issn1741-1122en_US
dc.identifier.issn1741-1130en_US
dc.identifier.urihttps://hdl.handle.net/2027.42/107581
dc.description.abstractParents of children with intellectual and/or developmental disabilities experience more stress in comparison to parents of normally developing children. Chronic stress could negatively influence parents' health while also impacting their ability to meet their child's needs. Despite this, there is a subset of parents who remain resilient in the face of significant stress in their lives. Knowledge of the factors that promote parental resilience could positively impact the services these families receive. The authors conducted a systematic review of research article databases and found support for coping style, optimism, and social support as resilience factors for parents of children with intellectual and/or developmental disabilities. Awareness of variables that promote resilience for parents of children with intellectual and/or development disabilities is likely to inform clinical practice through offering new avenues for clinical focus in all phases of family‐centered care.en_US
dc.publisherWiley Periodicals, Inc.en_US
dc.publisherTempleton Foundation Pressen_US
dc.subject.otherParentingen_US
dc.subject.otherDevelopmental Disabilitiesen_US
dc.subject.otherIntellectual Disabilityen_US
dc.subject.otherResilienceen_US
dc.subject.otherStressen_US
dc.titleStress and Resilience for Parents of Children With Intellectual and Developmental Disabilities: A Review of Key Factors and Recommendations for Practitionersen_US
dc.typeArticleen_US
dc.rights.robotsIndexNoFollowen_US
dc.subject.hlbsecondlevelPsychiatryen_US
dc.subject.hlbtoplevelHealth Sciencesen_US
dc.description.peerreviewedPeer Revieweden_US
dc.description.bitstreamurlhttp://deepblue.lib.umich.edu/bitstream/2027.42/107581/1/jppi12072.pdf
dc.identifier.doi10.1111/jppi.12072en_US
dc.identifier.sourceJournal of Policy and Practice in Intellectual Disabilitiesen_US
dc.identifier.citedreferencePeer, J. W., & Hillman, S. B. ( 2012 ). The mediating impact of coping style on stress perception for parents of individuals with intellectual disabilities. Journal of Intellectual Disabilities, 16, 45 – 59.en_US
dc.identifier.citedreferenceLangford, C. P. H., Bowsher, J., Maloney, J., & Lillis, P. P. ( 1997 ). Social support: A conceptual analysis. Journal of Advanced Nursing, 25, 95 – 100.en_US
dc.identifier.citedreferenceLuthar, S. S. ( 2006 ). Resilience in development: A synthesis of research across five decades. In D. Cicchetti & D. J. Cohen (Eds.), Developmental psychopathology: Risk, disorder, and adaptation (pp. 740 – 795 ). New York, NY: Wiley.en_US
dc.identifier.citedreferenceLuthar, S. S., & Cicchetti, D. ( 2000 ). The construct of resilience: Implications for interventions and social policy. Development and Psychopathology, 12, 857 – 885.en_US
dc.identifier.citedreferenceMcCubbin, H. I., & Patterson, J. M. ( 1983 ). The family stress process: The double ABCX model of adjustment and adaptation. Marriage & Family Review, 6, 7 – 37.en_US
dc.identifier.citedreferenceMiller, A. C., Gordon, R. M., Daniele, R. J., & Diller, L. ( 1992 ). Stress, appraisal, and coping in mothers of disabled and nondisabled individuals. Journal of Pediatric Psychology Special Issue: Theory‐Driven Research in Pediatric Psychology: I, 17, 587 – 605.en_US
dc.identifier.citedreferenceMiodrag, N., & Hodapp, R. M. ( 2010 ). Chronic stress and health among parents of children with intellectual and developmental disabilities. Current Opinion in Psychiatry, 23, 407 – 411.en_US
dc.identifier.citedreferenceMitchell, D. B., & Hauser‐Cram, P. ( 2010 ). Early childhood predictors of mothers' and fathers' relationships with adolescents with developmental disabilities. Journal of Intellectual Disability Research, 54, 487 – 500.en_US
dc.identifier.citedreferencePottie, C. G., & Ingram, K. M. ( 2008 ). Daily stress, coping, and well‐being in parents of individuals with autism: A multilevel modeling approach. Journal of Family Psychology, 22, 855 – 864.en_US
dc.identifier.citedreferenceRaina, P., O'Donnell, M., Rosenbaum, P., Brehaut, J., Walter, S. D., Russell, D., … Wood, E. ( 2005 ). The health and well‐being of caregivers of children with cerebral palsy. Pediatrics, 115, 626 – 636.en_US
dc.identifier.citedreferenceScheier, M. F., Carver, C. S., & Bridges, M. W. ( 1994 ). Distinguishing optimism from neuroticism (and trait anxiety, self‐mastery, and self‐esteem): A reevaluation of the life orientation test. Journal of Personality and Social Psychology, 67, 1063 – 1078.en_US
dc.identifier.citedreferenceScheier, M. F., Matthews, K. A., Owens, J. F., Magovern, G. J., Lefebvre, R., Abbott, R., & Carver, C. S. ( 1989 ). Dispositional optimism and recovery from coronary artery bypass surgery: The beneficial effects on physical and psychological well‐being. Journal of Personality and Social Psychology, 57, 1024 – 1040.en_US
dc.identifier.citedreferenceSeligman, M. E. P., & Csikszentmihalyi, M. ( 2000 ). Positive psychology: An introduction. American Psychologist, 55, 5 – 14.en_US
dc.identifier.citedreferenceShapiro, E. R. ( 2002 ). Chronic illness as a family process: A social‐developmental approach to promoting resilience. Journal of Clinical Psychology, 58, 1375 – 1384.en_US
dc.identifier.citedreferenceSipal, R. F., Schuengel, C., Voorman, J. M., Van Eck, M., & Becher, J. G. ( 2010 ). Course of behaviour problems of children with cerebral palsy: The role of parental stress and support. Child Care, Health & Development, 36, 74 – 84.en_US
dc.identifier.citedreferenceSmith, L. E., Seltzer, M. M., Tager‐Flusberg, H., Greenberg, J. S., & Carter, A. S. ( 2008 ). A comparative analysis of well‐being and coping among mothers of toddlers and mothers of adolescents with ASD. Journal of Autism and Developmental Disorders, 38, 876 – 889.en_US
dc.identifier.citedreferenceSmith, T. B., Oliver, M. N. I., & Innocenti, M. S. ( 2001 ). Parenting stress in families of individuals with disabilities. American Journal of Orthopsychiatry, 71, 257 – 257.en_US
dc.identifier.citedreferenceSpratt, E. G., Saylor, C. F., & Macias, M. M. ( 2007 ). Assessing parenting stress in multiple samples of children with special needs (CSN). Families, Systems, & Health, 25, 435 – 449.en_US
dc.identifier.citedreferenceWalsh, F. ( 1996 ). The concept of family resilience: Crisis and challenge. Family Process, 35, 261 – 281.en_US
dc.identifier.citedreferenceWalsh, F. ( 1998 ). Strengthening family resilience. New York, NY: Guilford Press.en_US
dc.identifier.citedreferenceWalsh, F. ( 2003 ). Family resilience: A framework for clinical practice. Family Process, 42, 1 – 18.en_US
dc.identifier.citedreferenceZimet, G. D., Dahlem, N. W., Zimet, S. G., & Farley, G. K. ( 1988 ). The multidimensional scale of perceived social support. Journal of Personality Assessment, 52, 30 – 41.en_US
dc.identifier.citedreferenceHeiman, T. ( 2002 ). Parents of children with disabilities: Resilience, coping, and future expectations. Journal of Developmental and Physical Disabilities, 14, 159 – 171.en_US
dc.identifier.citedreferenceAspinwall, L. G., & Grunhart, S. M. ( 2000 ). What I do know won't hurt me: Optimism, attention to negative information, coping, and health. In J. E. Gillham (Ed.), The science of optimism and hope symposium (pp. 163 – 200 ), West Conshohocken, PA: Templeton Foundation Press.en_US
dc.identifier.citedreferenceBaker, B. L., Blacher, J., & Olsson, M. B. ( 2005 ). Preschool individuals with and without developmental delay: Behaviour problems, parents' optimism and well‐being. Journal of Intellectual Disability Research, 49, 575 – 590.en_US
dc.identifier.citedreferenceBayat, M., & Schuntermann, P. ( 2013 ). Enhancing resilience in families of children with autism spectrum disorder. In D. S. Becvar (Ed.), Handbook of family resilience (pp. 409 – 424 ). New York, NY: Springer Science + Business Media.en_US
dc.identifier.citedreferenceBayat, M. M. ( 2007 ). Evidence of resilience in families of children with autism. Journal of Intellectual Disability Research, 51, 702 – 714.en_US
dc.identifier.citedreferenceBeckman, P. J. ( 1991 ). Comparison of mothers' and fathers' perceptions of the effect of young individuals with and without disabilities. American Journal on Mental Retardation, 95, 585 – 585.en_US
dc.identifier.citedreferenceBouma, R., & Schweitzer, R. ( 1990 ). The impact of chronic childhood illness on family stress: A comparison between autism and cystic fibrosis. Journal of Clinical Psychology, 46, 722 – 730.en_US
dc.identifier.citedreferenceCarver, C. S. ( 1997 ). You want to measure coping but your protocol's too long: Consider the brief COPE. International Journal of Behavioral Medicine, 4, 92 – 100.en_US
dc.identifier.citedreferenceCarver, C. S., Scheier, M. F., & Weintraub, J. K. ( 1989 ). Assessing coping strategies: A theoretically based approach. Journal of Personality and Social Psychology, 56, 267 – 283.en_US
dc.identifier.citedreferenceCowen, P. S., & Reed, D. A. ( 2002 ). Effects of respite care for children with developmental disabilities: Evaluation of an intervention for at risk families. Public Health Nursing, 19, 272 – 272.en_US
dc.identifier.citedreferenceCramm, J. M., & Nieboer, A. P. ( 2011 ). Psychological well‐being of caregivers of children with intellectual disabilities: Using parental stress as a mediating factor. Journal of Intellectual Disabilities, 15, 101 – 113.en_US
dc.identifier.citedreferenceCushner‐Weinstein, S., Dassoulas, K., Salpekar, J. A., Henderson, S. E., Pearl, P. L., Gaillard, W. D., & Weinstein, S. L. ( 2008 ). Parenting stress and childhood epilepsy: The impact of depression, learning, and seizure‐related factors. Epilepsy & Behavior, 13, 109 – 114.en_US
dc.identifier.citedreferencede Schipper, E. J., Riksen‐Walraven, J. M., Geurts, S. A. E., & Derksen, J. J. L. ( 2008 ). General mood of professional caregivers in child care centers and the quality of caregiver‐child interactions. Journal of Research in Personality, 42, 515 – 526.en_US
dc.identifier.citedreferenceDumas, J. E., Wolf, L. C., Fisman, S. N., & Culligan, A. ( 1991 ). Parenting stress, child behavior problems, and dysphonia in parents of individuals with autism, Down syndrome, behavior disorders, and normal development. Exceptionality, 2, 97 – 110.en_US
dc.identifier.citedreferenceFolkman, S. ( 2008 ). The case for positive emotions in the stress process. Anxiety, Stress & Coping, 21, 3 – 14.en_US
dc.identifier.citedreferenceFolkman, S., & Lazarus, R. S. ( 1986 ). Stress processes and depressive symptomatology. Journal of Abnormal Psychology, 95, 107 – 113.en_US
dc.identifier.citedreferenceFolkman, S., Lazarus, R. S., Dunkel‐Schetter, C., DeLongis, A., & Gruen, R. J. ( 1986 ). Dynamics of a stressful encounter: Cognitive appraisal, coping, and encounter outcomes. Journal of Personality and Social Psychology, 50, 992 – 1003.en_US
dc.identifier.citedreferenceFreedman, R. I., Litchfield, L. C., & Warfield, M. ( 1995 ). Balancing work and family: Perspectives of parents of children with developmental disabilities. Families in Society, 76, 507 – 514.en_US
dc.identifier.citedreferenceGlidden, L. M., & Natcher, A. L. ( 2009 ). Coping strategy use, personality, and adjustment of parents rearing children with developmental disabilities. Journal of Intellectual Disability Research, 53, 998 – 1013.en_US
dc.identifier.citedreferenceGraungaard, A., Andersen, J., & Skov, L. ( 2011 ). When resources get sparse: A longitudinal, qualitative study of emotions, coping and resource‐creation when parenting a young child with severe disabilities. Health: An Interdisciplinary Journal for the Social Study of Health, Illness and Medicine, 15, 115 – 136.en_US
dc.identifier.citedreferenceGreen, S. E. ( 2007 ). “We're tired, not sad”: Benefits and burdens of mothering a child with a disability. Social Science and Medicine, 64, 150 – 163.en_US
dc.identifier.citedreferenceHussain, A., & Juyal, I. ( 2007 ). Stress appraisal and coping strategies among parents of physically challenged individuals. Journal of the Indian Academy of Applied Psychology, 33, 179 – 182.en_US
dc.identifier.citedreferenceKarazsia, B. T., & Wildman, B. G. ( 2009 ). The mediating effects of parenting behaviors on maternal affect and reports of children's behavior. Journal of Child and Family Studies, 18, 342 – 349.en_US
dc.identifier.citedreferenceKasari, C., & Sigman, M. ( 1997 ). Linking parental perceptions to interactions in young individuals with autism. Journal of Autism and Developmental Disorders, 27, 39 – 57.en_US
dc.identifier.citedreferenceKayfitz, A. D., Gragg, M. N., & Orr, R. R. ( 2010 ). Positive experiences of mothers and fathers of individuals with autism. Journal of Applied Research in Intellectual Disabilities, 23, 337 – 343.en_US
dc.owningcollnameInterdisciplinary and Peer-Reviewed


Files in this item

Show simple item record

Remediation of Harmful Language

The University of Michigan Library aims to describe library materials in a way that respects the people and communities who create, use, and are represented in our collections. Report harmful or offensive language in catalog records, finding aids, or elsewhere in our collections anonymously through our metadata feedback form. More information at Remediation of Harmful Language.

Accessibility

If you are unable to use this file in its current format, please select the Contact Us link and we can modify it to make it more accessible to you.