Design, methods, and participant characteristics of the Impact of Personal Genomics (PGen) Study, a prospective cohort study of direct-to-consumer personal genomic testing customers
dc.contributor.author | Carere, Deanna A | |
dc.contributor.author | Couper, Mick P | |
dc.contributor.author | Crawford, Scott D | |
dc.contributor.author | Kalia, Sarah S | |
dc.contributor.author | Duggan, Jake R | |
dc.contributor.author | Moreno, Tanya A | |
dc.contributor.author | Mountain, Joanna L | |
dc.contributor.author | Roberts, J S | |
dc.contributor.author | Green, Robert C | |
dc.date.accessioned | 2014-12-08T17:46:48Z | |
dc.date.available | 2014-12-08T17:46:48Z | |
dc.date.issued | 2014-12-03 | |
dc.identifier.citation | Genome Medicine. 2014 Dec 03;6(12):96 | |
dc.identifier.uri | https://hdl.handle.net/2027.42/109518 | en_US |
dc.description.abstract | Abstract Designed in collaboration with 23andMe and Pathway Genomics, the Impact of Personal Genomics (PGen) Study serves as a model for academic-industry partnership and provides a longitudinal dataset for studying psychosocial, behavioral, and health outcomes related to direct-to-consumer personal genomic testing (PGT). Web-based surveys administered at three time points, and linked to individual-level PGT results, provide data on 1,464 PGT customers, of which 71% completed each follow-up survey and 64% completed all three surveys. The cohort includes 15.7% individuals of non-white ethnicity, and encompasses a range of income, education, and health levels. Over 90% of participants agreed to re-contact for future research. | |
dc.title | Design, methods, and participant characteristics of the Impact of Personal Genomics (PGen) Study, a prospective cohort study of direct-to-consumer personal genomic testing customers | |
dc.type | Article | en_US |
dc.description.bitstreamurl | http://deepblue.lib.umich.edu/bitstream/2027.42/109518/1/13073_2014_Article_96.pdf | |
dc.identifier.doi | 10.1186/s13073-014-0096-0 | en_US |
dc.language.rfc3066 | en | |
dc.rights.holder | Carere et al.; licensee BioMed Central Ltd. | |
dc.date.updated | 2014-12-08T17:46:48Z | |
dc.owningcollname | Interdisciplinary and Peer-Reviewed |
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