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Priorities for Patient‐Centered Outcomes Research: The Views of Minority and Underserved Communities

dc.contributor.authorGoold, Susan Dorr
dc.contributor.authorMyers, C. Daniel
dc.contributor.authorSzymecko, Lisa
dc.contributor.authorCunningham Collins, Carla
dc.contributor.authorMartinez, Sal
dc.contributor.authorLedón, Charo
dc.contributor.authorCampbell, Terrance R.
dc.contributor.authorDanis, Marion
dc.contributor.authorCargill, Stephanie Solomon
dc.contributor.authorKim, Hyungjin Myra
dc.contributor.authorRowe, Zachary
dc.date.accessioned2017-04-14T15:12:16Z
dc.date.available2018-05-15T21:02:51Zen
dc.date.issued2017-04
dc.identifier.citationGoold, Susan Dorr; Myers, C. Daniel; Szymecko, Lisa; Cunningham Collins, Carla; Martinez, Sal; Ledón, Charo ; Campbell, Terrance R.; Danis, Marion; Cargill, Stephanie Solomon; Kim, Hyungjin Myra; Rowe, Zachary (2017). "Priorities for Patient‐Centered Outcomes Research: The Views of Minority and Underserved Communities." Health Services Research 52(2): 599-615.
dc.identifier.issn0017-9124
dc.identifier.issn1475-6773
dc.identifier.urihttps://hdl.handle.net/2027.42/136533
dc.publisherWiley Periodicals, Inc.
dc.publisherThe Massachusetts Institute of Technology Press
dc.subject.otherdecision making
dc.subject.otherminority groups
dc.subject.otherPatient‐centered outcomes research
dc.subject.otherresource allocation
dc.subject.otherresearch priorities
dc.titlePriorities for Patient‐Centered Outcomes Research: The Views of Minority and Underserved Communities
dc.typeArticleen_US
dc.rights.robotsIndexNoFollow
dc.subject.hlbsecondlevelPublic Health
dc.subject.hlbtoplevelHealth Sciences
dc.description.peerreviewedPeer Reviewed
dc.description.bitstreamurlhttps://deepblue.lib.umich.edu/bitstream/2027.42/136533/1/hesr12505_am.pdf
dc.description.bitstreamurlhttps://deepblue.lib.umich.edu/bitstream/2027.42/136533/2/hesr12505.pdf
dc.description.bitstreamurlhttps://deepblue.lib.umich.edu/bitstream/2027.42/136533/3/hesr12505-sup-0001-AppendixSA1.pdf
dc.description.bitstreamurlhttps://deepblue.lib.umich.edu/bitstream/2027.42/136533/4/hesr12505-sup-0002-AppendixSA2.pdf
dc.identifier.doi10.1111/1475-6773.12505
dc.identifier.sourceHealth Services Research
dc.identifier.citedreferenceDanis, M., M.M. Ginsburg, and S. Goold. 2010. “ Experience in the United States with Public Deliberation about Health Insurance Benefits Using the Small Group Decision Exercise, CHAT.” The Journal of Ambulatory Care Management 33 ( 3 ): 205.
dc.identifier.citedreferenceBurkhalter, S., J. Gastil, and T. Kelshaw. 2002. “ A Conceptual Definition and Theoretical Model of Public Deliberation in Small Face to Face Groups.” Communication Theory 12: 398 – 422.
dc.identifier.citedreferenceNational Science Foundation. 2010. “ Open Government Initiative 2010 ” [accessed on December 2, 2010]. Available at http://www.nsf.gov/open/
dc.identifier.citedreferenceGoold, S.D., A.K. Biddle, G. Klipp, C.N. Hall, and M. Danis. 2005. “ Choosing Healthplans All Together: A Deliberative Exercise for Allocating Limited Health Care Resources.” Journal of Health Politics, Policy and Law 30 ( 4 ): 563 – 602.
dc.identifier.citedreferenceGoold, S.D. 1996. “ Allocating Health Care Resources: Cost Utility Analysis, Informed Democratic Decision Making, or the Veil of Ignorance? ” Journal of Health Politics, Policy and Law 21 ( 1 ): 69 – 98.
dc.identifier.citedreferenceFleck, L.M.. 2001 “ Healthcare Justice and Rational Democratic Deliberation.” American Journal of Bioethics 1 ( 2 ): 20 – 1.
dc.identifier.citedreferenceFleck, L.M. 1992. “ Just Health Care Rationing: A Democratic Decision Making Approach.” University of Pennsylvania Law Review 140 ( 5 ): 1597 – 636.
dc.identifier.citedreferenceFishkin, J.F. 1997. The Voice of the People. New Haven, CT: Yale University Press.
dc.identifier.citedreferenceCohen, J. 1997. “ Deliberation and Democratic Legitimacy.” In Deliberative Democracy: Essays on Reasons and Politics, edited by J.F. Bohman, and W. Rehg, pp. 321 – 48. Cambridge, MA: The Massachusetts Institute of Technology Press.
dc.identifier.citedreferenceVayena, E. 2014. “ The Next Step in the Patient Revolution: Patients Initiating and Leading Research.” British Medical Journal 349: g4318.
dc.identifier.citedreferenceTallon, D., J. Chard, and P. Dieppe. 2000. “ Relation between Agendas of the Research Community and the Research Consumer.” The Lancet 355 ( 9220 ): 2037 – 40.
dc.identifier.citedreferenceStataCorp. 2013. Stata Statistical Software: Release 13. College Station, TX: StataCorp LP.
dc.identifier.citedreferenceSolomon, S., and J. Abelson. 2012. “ Why and When Should We Use Public Deliberation? ” Hastings Center Report 42 ( 2 ): 17 – 20.
dc.identifier.citedreferenceRowe, G., D. Rawsthorne, T. Scarpello, and J.R. Dainty. 2010. “ Public Engagement in Research Funding: A Study of Public Capacities and Engagement Methodology.” Public Understanding of Science 19 ( 2 ): 225 – 39, 1: 1‐15.
dc.identifier.citedreferencePPACA Sec. 6301 D Sec 1181 (d) (1)
dc.identifier.citedreferencePatient Protection and Affordable Care Act. 2010.
dc.owningcollnameInterdisciplinary and Peer-Reviewed


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