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Development of quality metrics for ambulatory care in pediatric patients with tetralogy of Fallot
dc.contributor.authorVillafane, Juan
dc.contributor.authorEdwards, Thomas C.
dc.contributor.authorDiab, Karim A.
dc.contributor.authorSatou, Gary M.
dc.contributor.authorSaarel, Elizabeth
dc.contributor.authorLai, Wyman W.
dc.contributor.authorSerwer, Gerald A.
dc.contributor.authorKarpawich, Peter P.
dc.contributor.authorCross, Russell
dc.contributor.authorSchiff, Russell
dc.contributor.authorChowdhury, Devyani
dc.contributor.authorHougen, Thomas J.
dc.date.accessioned2017-12-15T16:47:15Z
dc.date.available2019-02-01T19:56:25Zen
dc.date.issued2017-12
dc.identifier.citationVillafane, Juan; Edwards, Thomas C.; Diab, Karim A.; Satou, Gary M.; Saarel, Elizabeth; Lai, Wyman W.; Serwer, Gerald A.; Karpawich, Peter P.; Cross, Russell; Schiff, Russell; Chowdhury, Devyani; Hougen, Thomas J. (2017). "Development of quality metrics for ambulatory care in pediatric patients with tetralogy of Fallot." Congenital Heart Disease 12(6): 762-767.
dc.identifier.issn1747-079X
dc.identifier.issn1747-0803
dc.identifier.urihttps://hdl.handle.net/2027.42/139935
dc.description.abstractObjectiveThe objective of this study was to develop quality metrics (QMs) relating to the ambulatory care of children after complete repair of tetralogy of Fallot (TOF).DesignA workgroup team (WT) of pediatric cardiologists with expertise in all aspects of ambulatory cardiac management was formed at the request of the American College of Cardiology (ACC) and the Adult Congenital and Pediatric Cardiology Council (ACPC), to review published guidelines and consensus data relating to the ambulatory care of repaired TOF patients under the age of 18 years. A set of quality metrics (QMs) was proposed by the WT. The metrics went through a two‐step evaluation process. In the first step, the RAND‐UCLA modified Delphi methodology was employed and the metrics were voted on feasibility and validity by an expert panel. In the second step, QMs were put through an “open comments” process where feedback was provided by the ACPC members. The final QMs were approved by the ACPC council.ResultsThe TOF WT formulated 9 QMs of which only 6 were submitted to the expert panel; 3 QMs passed the modified RAND‐UCLA and went through the “open comments” process. Based on the feedback through the open comment process, only 1 metric was finally approved by the ACPC council.ConclusionsThe ACPC Council was able to develop QM for ambulatory care of children with repaired TOF. These patients should have documented genetic testing for 22q11.2 deletion. However, lack of evidence in the literature made it a challenge to formulate other evidence‐based QMs.
dc.publisherWiley Periodicals, Inc.
dc.subject.otherpediatric cardiology
dc.subject.otherquality metrics
dc.subject.othertetralogy of Fallot
dc.subject.othercongenital heart disease
dc.titleDevelopment of quality metrics for ambulatory care in pediatric patients with tetralogy of Fallot
dc.typeArticleen_US
dc.rights.robotsIndexNoFollow
dc.subject.hlbsecondlevelInternal Medicine and Specialties
dc.subject.hlbtoplevelHealth Sciences
dc.description.peerreviewedPeer Reviewed
dc.description.bitstreamurlhttps://deepblue.lib.umich.edu/bitstream/2027.42/139935/1/chd12523_am.pdf
dc.description.bitstreamurlhttps://deepblue.lib.umich.edu/bitstream/2027.42/139935/2/chd12523.pdf
dc.identifier.doi10.1111/chd.12523
dc.identifier.sourceCongenital Heart Disease
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dc.owningcollnameInterdisciplinary and Peer-Reviewed


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