Show simple item record

Identifying patient‐ and family‐centered outcomes relevant to inpatient versus at‐home management of neutropenia in children with acute myeloid leukemia

dc.contributor.authorSzymczak, Julia E.
dc.contributor.authorGetz, Kelly D.
dc.contributor.authorMadding, Rachel
dc.contributor.authorFisher, Brian
dc.contributor.authorRaetz, Elizabeth
dc.contributor.authorHijiya, Nobuko
dc.contributor.authorGramatges, Maria M.
dc.contributor.authorHenry, Meret
dc.contributor.authorMian, Amir
dc.contributor.authorArnold, Staci D.
dc.contributor.authorAftandilian, Catherine
dc.contributor.authorCollier, Anderson B.
dc.contributor.authorAplenc, Richard
dc.date.accessioned2018-03-07T18:26:20Z
dc.date.available2019-05-13T14:45:25Zen
dc.date.issued2018-04
dc.identifier.citationSzymczak, Julia E.; Getz, Kelly D.; Madding, Rachel; Fisher, Brian; Raetz, Elizabeth; Hijiya, Nobuko; Gramatges, Maria M.; Henry, Meret; Mian, Amir; Arnold, Staci D.; Aftandilian, Catherine; Collier, Anderson B.; Aplenc, Richard (2018). "Identifying patient‐ and family‐centered outcomes relevant to inpatient versus at‐home management of neutropenia in children with acute myeloid leukemia." Pediatric Blood & Cancer 65(4): n/a-n/a.
dc.identifier.issn1545-5009
dc.identifier.issn1545-5017
dc.identifier.urihttps://hdl.handle.net/2027.42/142562
dc.description.abstractEfficacy of therapeutic strategies relative to patient‐ and family‐centered outcomes in pediatric oncology must be assessed. We sought to identify outcomes important to children with acute myeloid leukemia and their families related to inpatient versus at‐home management of neutropenia. We conducted qualitative interviews with 32 children ≥8 years old and 54 parents. Analysis revealed the impact of neutropenia management strategy on siblings, parent anxiety, and child sleep quality as being outcomes of concern across respondents. These themes were used to inform the design of a questionnaire that is currently being used in a prospective, multiinstitutional comparative effectiveness trial.
dc.publisherWiley Periodicals, Inc.
dc.publisherSage
dc.subject.otheracute myeloid leukemia
dc.subject.otherqualitative methodology
dc.subject.otherpatient‐reported outcomes
dc.subject.otherneutropenia
dc.titleIdentifying patient‐ and family‐centered outcomes relevant to inpatient versus at‐home management of neutropenia in children with acute myeloid leukemia
dc.typeArticleen_US
dc.rights.robotsIndexNoFollow
dc.subject.hlbsecondlevelPediatrics
dc.subject.hlbtoplevelHealth Sciences
dc.description.peerreviewedPeer Reviewed
dc.description.bitstreamurlhttps://deepblue.lib.umich.edu/bitstream/2027.42/142562/1/pbc26927.pdf
dc.description.bitstreamurlhttps://deepblue.lib.umich.edu/bitstream/2027.42/142562/2/pbc26927_am.pdf
dc.identifier.doi10.1002/pbc.26927
dc.identifier.sourcePediatric Blood & Cancer
dc.identifier.citedreferenceLehrnbecher T, Phillips R, Alexander S, et al. Guideline for the management of fever and neutropenia in children with cancer and/or undergoing hematopoietic stem‐cell transplantation. J Clin Oncol. 2012; 30 ( 35 ): 4427 – 4438.
dc.identifier.citedreferenceLehrnbecher T, Ethier MC, Zaoutis T, et al. International variations in infection supportive care practices for paediatric patients with acute myeloid leukaemia. Br J Haematol. 2009; 147 ( 1 ): 125 – 128.
dc.identifier.citedreferenceRosenberg AR, Dussel V, Kang T, et al. Psychological distress in parents of children with advanced cancer. JAMA Pediatr. 2013; 167 ( 6 ): 537 – 543.
dc.identifier.citedreferenceLinder LA, Christian BJ. Nighttime sleep disruptions, the hospital care environment, and symptoms in elementary school‐age children with cancer. Oncol Nurs Forum. 2012; 39 ( 6 ): 553 – 561.
dc.identifier.citedreferenceForrest CB, Silber JH. Concept and measurement of pediatric value. Acad Pediatr. 2014; 14 ( 5 Suppl ): S33 – S38.
dc.identifier.citedreferenceShudy M, de Almeida ML, Ly S, et al. Impact of pediatric critical illness and injury on families: a systematic literature review. Pediatrics. 2006; 118 ( 3 ): S203 – S218.
dc.identifier.citedreferenceCharmaz K. Constructing Grounded Theory: A Practical Guide Through Qualitative Analysis. Thousand Oaks, CA: Sage; 2006.
dc.identifier.citedreferenceAlderfer MA, Long KA, Lown EA, et al. Psychosocial adjustment of siblings of children with cancer: a systematic review. Psychooncology. 2010; 19 ( 8 ): 789 – 805.
dc.identifier.citedreferenceMiles MB, Huberman AM, Saldana J. Qualitative Data Analysis: A Methods Sourcebook. Thousand Oaks, CA: Sage; 2014.
dc.identifier.citedreferenceKazak AE. Families of chronically ill children: a systems and social‐ecological model of adaptation and challenge. J Consult Clin Psychol. 1989; 57 ( 1 ): 25 – 30.
dc.identifier.citedreferenceDiorio C, Martino J, Boydell KM, et al. Parental perspectives on inpatient versus outpatient management of pediatric febrile neutropenia. J Pediatr Oncol Nurs. 2011; 28 ( 6 ): 355 – 362.
dc.identifier.citedreferenceSung L, Feldman BM, Schwamborn G, et al. Inpatient versus outpatient management of low‐risk pediatric febrile neutropenia: measuring parents’ and healthcare professionals’ preferences. J Clin Oncol. 2004; 22 ( 19 ): 3922 – 3929.
dc.identifier.citedreferenceCheng S, Teuffel O, Ethier MC, et al. Health‐related quality of life anticipated with different management strategies for paediatric febrile neutropaenia. Br J Cancer. 2011; 105 ( 5 ): 606 – 611.
dc.identifier.citedreferenceSung L, Regier DA. Decision making in pediatric oncology: evaluation and incorporation of patient and parent preferences. Pediatr Blood Cancer. 2013; 60 ( 4 ): 558 – 563.
dc.identifier.citedreferenceSung L, Aplenc R, Alonzo TA, Gerbing RB, Lehrnbecher T, Gamis AS. Effectiveness of supportive care measures to reduce infections in pediatric AML: a report from the Children’s Oncology Group. Blood. 2013; 121 ( 18 ): 3573 – 3577.
dc.identifier.citedreferenceQSR International. NVivo qualitative data analysis Software [computer program]. Version 11: QSR International Pvt. Ltd. 2016.
dc.identifier.citedreferenceGuest G, Bruce A, Johnson L. How many interviews are enough? An experiment with data saturation and variability. Methods. 2006; 18 ( 1 ): 23.
dc.owningcollnameInterdisciplinary and Peer-Reviewed


Files in this item

Show simple item record

Remediation of Harmful Language

The University of Michigan Library aims to describe library materials in a way that respects the people and communities who create, use, and are represented in our collections. Report harmful or offensive language in catalog records, finding aids, or elsewhere in our collections anonymously through our metadata feedback form. More information at Remediation of Harmful Language.

Accessibility

If you are unable to use this file in its current format, please select the Contact Us link and we can modify it to make it more accessible to you.