Identifying patient‐ and family‐centered outcomes relevant to inpatient versus at‐home management of neutropenia in children with acute myeloid leukemia
dc.contributor.author | Szymczak, Julia E. | |
dc.contributor.author | Getz, Kelly D. | |
dc.contributor.author | Madding, Rachel | |
dc.contributor.author | Fisher, Brian | |
dc.contributor.author | Raetz, Elizabeth | |
dc.contributor.author | Hijiya, Nobuko | |
dc.contributor.author | Gramatges, Maria M. | |
dc.contributor.author | Henry, Meret | |
dc.contributor.author | Mian, Amir | |
dc.contributor.author | Arnold, Staci D. | |
dc.contributor.author | Aftandilian, Catherine | |
dc.contributor.author | Collier, Anderson B. | |
dc.contributor.author | Aplenc, Richard | |
dc.date.accessioned | 2018-03-07T18:26:20Z | |
dc.date.available | 2019-05-13T14:45:25Z | en |
dc.date.issued | 2018-04 | |
dc.identifier.citation | Szymczak, Julia E.; Getz, Kelly D.; Madding, Rachel; Fisher, Brian; Raetz, Elizabeth; Hijiya, Nobuko; Gramatges, Maria M.; Henry, Meret; Mian, Amir; Arnold, Staci D.; Aftandilian, Catherine; Collier, Anderson B.; Aplenc, Richard (2018). "Identifying patient‐ and family‐centered outcomes relevant to inpatient versus at‐home management of neutropenia in children with acute myeloid leukemia." Pediatric Blood & Cancer 65(4): n/a-n/a. | |
dc.identifier.issn | 1545-5009 | |
dc.identifier.issn | 1545-5017 | |
dc.identifier.uri | https://hdl.handle.net/2027.42/142562 | |
dc.description.abstract | Efficacy of therapeutic strategies relative to patient‐ and family‐centered outcomes in pediatric oncology must be assessed. We sought to identify outcomes important to children with acute myeloid leukemia and their families related to inpatient versus at‐home management of neutropenia. We conducted qualitative interviews with 32 children ≥8 years old and 54 parents. Analysis revealed the impact of neutropenia management strategy on siblings, parent anxiety, and child sleep quality as being outcomes of concern across respondents. These themes were used to inform the design of a questionnaire that is currently being used in a prospective, multiinstitutional comparative effectiveness trial. | |
dc.publisher | Wiley Periodicals, Inc. | |
dc.publisher | Sage | |
dc.subject.other | acute myeloid leukemia | |
dc.subject.other | qualitative methodology | |
dc.subject.other | patient‐reported outcomes | |
dc.subject.other | neutropenia | |
dc.title | Identifying patient‐ and family‐centered outcomes relevant to inpatient versus at‐home management of neutropenia in children with acute myeloid leukemia | |
dc.type | Article | en_US |
dc.rights.robots | IndexNoFollow | |
dc.subject.hlbsecondlevel | Pediatrics | |
dc.subject.hlbtoplevel | Health Sciences | |
dc.description.peerreviewed | Peer Reviewed | |
dc.description.bitstreamurl | https://deepblue.lib.umich.edu/bitstream/2027.42/142562/1/pbc26927.pdf | |
dc.description.bitstreamurl | https://deepblue.lib.umich.edu/bitstream/2027.42/142562/2/pbc26927_am.pdf | |
dc.identifier.doi | 10.1002/pbc.26927 | |
dc.identifier.source | Pediatric Blood & Cancer | |
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dc.owningcollname | Interdisciplinary and Peer-Reviewed |
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