Effectiveness of informational decision aids and a live donor financial assistance program on pursuit of live kidney transplants in African American hemodialysis patients

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dc.contributor.author Boulware, L. Ebony
dc.contributor.author Ephraim, Patti L
dc.contributor.author Ameling, Jessica
dc.contributor.author Lewis-Boyer, LaPricia
dc.contributor.author Rabb, Hamid
dc.contributor.author Greer, Raquel C
dc.contributor.author Crews, Deidra C
dc.contributor.author Jaar, Bernard G
dc.contributor.author Auguste, Priscilla
dc.contributor.author Purnell, Tanjala S
dc.contributor.author Lamprea-Monteleagre, Julio A
dc.contributor.author Olufade, Tope
dc.contributor.author Gimenez, Luis
dc.contributor.author Cook, Courtney
dc.contributor.author Campbell, Tiffany
dc.contributor.author Woodall, Ashley
dc.contributor.author Ramamurthi, Hema
dc.contributor.author Davenport, Cleomontina A
dc.contributor.author Choudhury, Kingshuk R
dc.contributor.author Weir, Matthew R
dc.contributor.author Hanes, Donna S
dc.contributor.author Wang, Nae-Yuh
dc.contributor.author Vilme, Helene
dc.contributor.author Powe, Neil R
dc.date.accessioned 2018-05-06T03:31:42Z
dc.date.available 2018-05-06T03:31:42Z
dc.date.issued 2018-05-03
dc.identifier.citation BMC Nephrology. 2018 May 03;19(1):107
dc.identifier.uri https://doi.org/10.1186/s12882-018-0901-x
dc.identifier.uri http://hdl.handle.net/2027.42/143512
dc.description.abstract Abstract Background African Americans have persistently poor access to living donor kidney transplants (LDKT). We conducted a small randomized trial to provide preliminary evidence of the effect of informational decision support and donor financial assistance interventions on African American hemodialysis patients’ pursuit of LDKT. Methods Study participants were randomly assigned to receive (1) Usual Care; (2) the Providing Resources to Enhance African American Patients’ Readiness to Make Decisions about Kidney Disease (PREPARED); or (3) PREPARED plus a living kidney donor financial assistance program. Our primary outcome was patients’ actions to pursue LDKT (discussions with family, friends, or doctor; initiation or completion of the recipient LDKT medical evaluation; or identification of a donor). We also measured participants’ attitudes, concerns, and perceptions of interventions’ usefulness. Results Of 329 screened, 92 patients were eligible and randomized to Usual Care (n = 31), PREPARED (n = 30), or PREPARED plus financial assistance (n = 31). Most participants reported interventions helped their decision making about renal replacement treatments (62%). However there were no statistically significant improvements in LDKT actions among groups over 6 months. Further, no participants utilized the living donor financial assistance benefit. Conclusions Findings suggest these interventions may need to be paired with personal support or navigation services to overcome key communication, logistical, and financial barriers to LDKT. Trial registration ClinicalTrials.gov [ NCT01439516 ] [August 31, 2011].
dc.title Effectiveness of informational decision aids and a live donor financial assistance program on pursuit of live kidney transplants in African American hemodialysis patients
dc.type Journal Article
dc.description.bitstreamurl https://deepblue.lib.umich.edu/bitstream/2027.42/143512/1/12882_2018_Article_901.pdf
dc.language.rfc3066 en
dc.rights.holder The Author(s).
dc.date.updated 2018-05-06T03:31:43Z
dc.owningcollname Interdisciplinary and Peer-Reviewed
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