Members of Minority and Underserved Communities Set Priorities for Health Research
dc.contributor.author | Goold, Susan Dorr | |
dc.contributor.author | Myers, C. Daniel | |
dc.contributor.author | Danis, Marion | |
dc.contributor.author | Abelson, Julia | |
dc.contributor.author | Barnett, Steve | |
dc.contributor.author | Calhoun, Karen | |
dc.contributor.author | Campbell, Eric G. | |
dc.contributor.author | LaHahnn, Lynette | |
dc.contributor.author | Hammad, Adnan | |
dc.contributor.author | Rosenbaum, René Pérez | |
dc.contributor.author | Kim, Hyungjin Myra | |
dc.contributor.author | Salman, Cengiz | |
dc.contributor.author | Szymecko, Lisa | |
dc.contributor.author | Rowe, Zachary E. | |
dc.date.accessioned | 2019-01-15T20:23:38Z | |
dc.date.available | 2020-02-03T20:18:24Z | en |
dc.date.issued | 2018-12 | |
dc.identifier.citation | Goold, Susan Dorr ; Myers, C. Daniel ; Danis, Marion ; Abelson, Julia ; Barnett, Steve ; Calhoun, Karen ; Campbell, Eric G. ; , LYNETTE; Hammad, Adnan ; Rosenbaum, René Pérez ; Kim, Hyungjin Myra ; Salman, Cengiz ; Szymecko, Lisa ; Rowe, Zachary E. (2018). "Members of Minority and Underserved Communities Set Priorities for Health Research." The Milbank Quarterly 96(4): 675-705. | |
dc.identifier.issn | 0887-378X | |
dc.identifier.issn | 1468-0009 | |
dc.identifier.uri | https://hdl.handle.net/2027.42/146820 | |
dc.publisher | Wiley Periodicals, Inc. | |
dc.publisher | Global Forum for Health Research | |
dc.subject.other | minority groups, decision making, research priorities, deliberation, deliberative democracy, community engagement | |
dc.subject.other | resource allocation | |
dc.title | Members of Minority and Underserved Communities Set Priorities for Health Research | |
dc.type | Article | en_US |
dc.rights.robots | IndexNoFollow | |
dc.subject.hlbsecondlevel | Public Health (General) | |
dc.subject.hlbtoplevel | Health Sciences | |
dc.description.peerreviewed | Peer Reviewed | |
dc.description.bitstreamurl | https://deepblue.lib.umich.edu/bitstream/2027.42/146820/1/milq12354.pdf | |
dc.description.bitstreamurl | https://deepblue.lib.umich.edu/bitstream/2027.42/146820/2/milq12354_am.pdf | |
dc.identifier.doi | 10.1111/1468-0009.12354 | |
dc.identifier.source | The Milbank Quarterly | |
dc.identifier.citedreference | Davis MM, Singer DC, Butchart A, Clark SJ. Who do voters prefer for children’s health issues? University of Michigan Child Health Evaluation and Research Unit, C.S. Mott Children’s Hospital. National Poll on Children’s Health. 2008; 5 ( 1 ). | |
dc.identifier.citedreference | Lomas J, Fulop N, Gagnon D, Allen P. On being a good listener: setting priorities for applied health services research. Milbank Q. 2003; 81 ( 3 ): 363 ‐ 388. | |
dc.identifier.citedreference | Patient‐Centered Outcomes Research Institute (PCORI). What we mean by engagement. http://www.pcori.org/funding-opportunities/what-we-mean-engagement. Updated October 12, 2015. Accessed February 16, 2018. | |
dc.identifier.citedreference | James Lind Alliance. About the James Lind Alliance. http://www.jla.nihr.ac.uk/about-the-james-lind-alliance/. Accessed February 16, 2018. | |
dc.identifier.citedreference | National Institute for Health Research. Patient and public involvement. https://www.nihr.ac.uk/patients-and-public/. Accessed February 16, 2018. | |
dc.identifier.citedreference | Solomon S, Abelson J. Why and when should we use public deliberation ? Hastings Cent Rep. 2012; 42 ( 2 ): 17 ‐ 20. | |
dc.identifier.citedreference | Fishkin J. The Voice of the People. New Haven, CT: Yale University Press; 1997. | |
dc.identifier.citedreference | Cohen, J. Deliberation and democratic legitimacy. In: Bohman J, Rehg W, eds. Deliberative Democracy: Essays on Reasons and Politics. Cambridge, MA: MIT Press; 1997: 321 ‐ 348. | |
dc.identifier.citedreference | Burkhalter S, Gastil J, Kelshaw T. A conceptual definition and theoretical model of public deliberation in small face‐to‐face groups. Community Theory. 2002; 12 ( 4 ): 398 ‐ 422. | |
dc.identifier.citedreference | Goold SD, Biddle AK, Klipp G, Hall CN, Danis M. Choosing healthplans all together: a deliberative exercise for allocating limited health care resources. J Health Politics Policy Law. 2005; 30 ( 4 ): 563 ‐ 601. | |
dc.identifier.citedreference | Danis M, Ginsburg M, Goold S. Experience in the United States with public deliberation about health insurance benefits using the small group decision exercise, CHAT. J Ambulatory Care Manage. 2010; 33 ( 3 ): 205 ‐ 214. | |
dc.identifier.citedreference | Mayer IS. The gaming of policy and the politics of gaming: a review. Simul Gaming. 2009; 40 ( 6 ): 825 ‐ 862. | |
dc.identifier.citedreference | Hassan L. Governments should play games: towards a framework for the gamification of civic engagement platforms. Simul Gaming. 2017; 48 ( 2 ): 249 ‐ 267. | |
dc.identifier.citedreference | Goold S, Rowe Z, Calhoun K, et al. The state as community in community‐based participatory research. Prog Community Health Partnership. 2016; 10 ( 4 ): 515 ‐ 522. | |
dc.identifier.citedreference | Health Resources & Services Administration. Medically Underserved Areas and Populations (MUA/Ps). https://bhw.hrsa.gov/shortage-designation/muap. Updated October 2016. Accessed February 16, 2018. | |
dc.identifier.citedreference | Gutman A, Thompson D. Why Deliberative Democracy ? Princeton, NJ: Princeton University Press; 2004. | |
dc.identifier.citedreference | Chen H, Kramer EJ, Chen T, Chung H. Engaging Asian Americans for mental health research: challenges and solutions. J Immigrant Minority Health. 2005; 7 ( 2 ): 109 ‐ 116. | |
dc.identifier.citedreference | Padgett DK, Henwood B, Abrams C, Drake RE. Social relationships among persons who have experienced serious mental illness, substance abuse, and homelessness: implications for recovery. Am J Orthopsychiatry. 2008; 78 ( 3 ): 333 ‐ 339. | |
dc.identifier.citedreference | Deegan PE. Spirit breaking: when the helping professions hurt. Humanistic Psychol. 1990; 18 ( 3 ): 301 ‐ 313. | |
dc.identifier.citedreference | Ginsburg M, Goold SD, Danis M. (De)constructing “basic” benefits: citizens define the limits of coverage. Health Aff. 2006; 25 ( 6 ): 1648 ‐ 1655. | |
dc.identifier.citedreference | Evans‐Lacko SE, Baum N, Danis M, Biddle A, Goold S. Laypersons’ choices and deliberations for mental health coverage. Adm Policy Ment Health. 2012; 39 ( 3 ): 158 ‐ 169. | |
dc.identifier.citedreference | Broman CL. Race differences in the receipt of mental health services among young adults. Psychol Serv. 2012; 9 ( 1 ): 38 ‐ 48. | |
dc.identifier.citedreference | George S, Duran N, Norris K. A systematic review of barriers and facilitators to minority research participation among African Americans, Latinos, Asian Americans, and Pacific Islanders. Am J Public Health. 2014; 104 ( 2 ): e16 ‐ e31. | |
dc.identifier.citedreference | Wilkins CH, Spofford M, Williams N, et al. Community representatives’ involvement in clinical and translational science awardee activities. Clin Translational Sci. 2013; 6 ( 4 ): 292 ‐ 296. | |
dc.identifier.citedreference | Hannagan RJ, Larimer CW. Does gender composition affect group decision outcomes? Evidence from a laboratory experiment. Political Behav. 2010; 32 ( 1 ): 51 ‐ 67. | |
dc.identifier.citedreference | Karpowitz CF, Mendelberg T, Shaker L. Gender inequality in deliberative participation. Am Political Sci Rev. 2012; 106 ( 3 ): 533 ‐ 547. | |
dc.identifier.citedreference | Sampat BN, Buterbaugh K, Perl M. New evidence on the allocation of NIH funds across diseases. Milbank Q. 2013; 91 ( 1 ): 163 ‐ 185. | |
dc.identifier.citedreference | Thurston WE, MacKean G, Vollman A, et al. Public participation in regional health policy: a theoretical framework. Health Policy. 2004; 73: 237 ‐ 252. | |
dc.identifier.citedreference | Duke RD. A paradigm for game design. Simul Gaming. 1980; 1 ( 3 ): 364 ‐ 377. | |
dc.identifier.citedreference | Geurts JLA, Duke RD, Vermeulen PAM. Policy gaming for strategy and change. Long Range Planning. 2007; 40 ( 6 ): 535 ‐ 558. | |
dc.identifier.citedreference | Davey S. The 10/90 Report on Health Research 2003–2004. Geneva, Switzerland: Global Forum for Health Research; 2004. | |
dc.identifier.citedreference | Viergever RF, Hendriks TC. The 10 largest public and philanthropic funders of health research in the world: what they fund and how they distribute their funds. Health Res Policy Syst. 2016; 14: 12. | |
dc.identifier.citedreference | Callahan D. Shaping biomedical research priorities: the case of the National Institutes of Health. Health Care Analysis. 1999; 7 ( 2 ): 115 ‐ 129. | |
dc.identifier.citedreference | Resnik D. Setting biomedical research priorities: justice, science, and public participation. Kennedy Institute Ethics J. 2001; 11 ( 2 ): 181 ‐ 204. | |
dc.identifier.citedreference | Fleck L. Healthcare justice and rational democratic deliberation. Am. J. Bioethics. 2001; 1 ( 2 ): 20 ‐ 21. | |
dc.identifier.citedreference | Goold SD. Allocating health care: cost‐utility analysis, informed democratic decision making, or the veil of ignorance ? J Health Politics Policy Law. 1996; 21 ( 1 ): 69 ‐ 98. | |
dc.identifier.citedreference | Vayena E. The next step in the patient revolution: patients initiating and leading research. BMJ. 2014; 349: g4318. | |
dc.identifier.citedreference | Selby JV, Beal AC, Frank L. The Patient‐Centered Outcomes Research Institute (PCORI) national priorities for research and initial research agenda. JAMA. 2012; 307 ( 15 ): 1583 ‐ 1584. | |
dc.owningcollname | Interdisciplinary and Peer-Reviewed |
Files in this item
Remediation of Harmful Language
The University of Michigan Library aims to describe library materials in a way that respects the people and communities who create, use, and are represented in our collections. Report harmful or offensive language in catalog records, finding aids, or elsewhere in our collections anonymously through our metadata feedback form. More information at Remediation of Harmful Language.
Accessibility
If you are unable to use this file in its current format, please select the Contact Us link and we can modify it to make it more accessible to you.