Show simple item record

Cosmetic outcomes and quality of life in children with cardiac implantable electronic devices

dc.contributor.authorGist, Katja M.
dc.contributor.authorMarino, Bradley S.
dc.contributor.authorPalmer, Claire
dc.contributor.authorFish, Frank A.
dc.contributor.authorMoore, Jeremy P.
dc.contributor.authorCzosek, Richard J.
dc.contributor.authorCassedy, Amy
dc.contributor.authorLaPage, Martin J.
dc.contributor.authorLaw, Ian H.
dc.contributor.authorGarnreiter, Jason
dc.contributor.authorCannon, Bryan C.
dc.contributor.authorCollins, Kathryn K.
dc.date.accessioned2019-01-15T20:28:26Z
dc.date.available2020-03-03T21:29:35Zen
dc.date.issued2019-01
dc.identifier.citationGist, Katja M.; Marino, Bradley S.; Palmer, Claire; Fish, Frank A.; Moore, Jeremy P.; Czosek, Richard J.; Cassedy, Amy; LaPage, Martin J.; Law, Ian H.; Garnreiter, Jason; Cannon, Bryan C.; Collins, Kathryn K. (2019). "Cosmetic outcomes and quality of life in children with cardiac implantable electronic devices." Pacing and Clinical Electrophysiology 42(1): 46-57.
dc.identifier.issn0147-8389
dc.identifier.issn1540-8159
dc.identifier.urihttps://hdl.handle.net/2027.42/147032
dc.description.abstractBackgroundAxillary implant location is an alternative implant location in patients for cardiac implantable electronic devices (CIEDs) for the purposes of improved cosmetic outcome. The impact from the patient’s perspective is unknown. The purpose of this study was to compare scar perception scores and quality of life (QOL) in pediatric patients with axillary CIED implant location versus the standard infraclavicular approach.MethodsThis is a multicenter prospective study conducted at eight pediatric centers and it includes patients aged from 8 to 18 years with a CIED. Patients with prior sternotomy were excluded. Scar perception and QOL outcomes were compared between the infraclavicular and axillary implant locations.ResultsA total of 141 patients (83 implantable cardioverter defibrillator [ICD]/58 pacemakers) were included, 55 with an axillary device and 86 with an infraclavicular device. Patients with an ICD in the axillary position had better perception of scar appearance and consciousness. Patients in the axillary group reported, on average, a total Pediatric QOL Inventory score that was 6 (1, 11) units higher than the infraclavicular group, after adjusting for sex and race (P = 0.02).ConclusionsQOL is significantly improved in axillary in comparison to the infraclavicular CIED position, regardless of device type. Scar perception is improved in patients with ICD in the axillary position.
dc.publisherWiley Periodicals, Inc.
dc.publisherUniversity of Denver
dc.subject.otherquality of life
dc.subject.otherdefibrillation
dc.subject.otherimplantable cardioverter defibrillator
dc.subject.otherpacemaker
dc.subject.otherpediatrics
dc.titleCosmetic outcomes and quality of life in children with cardiac implantable electronic devices
dc.typeArticleen_US
dc.rights.robotsIndexNoFollow
dc.subject.hlbsecondlevelPhysiology
dc.subject.hlbtoplevelHealth Sciences
dc.description.peerreviewedPeer Reviewed
dc.description.bitstreamurlhttps://deepblue.lib.umich.edu/bitstream/2027.42/147032/1/pace13522.pdf
dc.description.bitstreamurlhttps://deepblue.lib.umich.edu/bitstream/2027.42/147032/2/pace13522_am.pdf
dc.identifier.doi10.1111/pace.13522
dc.identifier.sourcePacing and Clinical Electrophysiology
dc.identifier.citedreferenceDurani P, McGrouther DA, Ferguson MW. The Patient Scar Assessment Questionnaire: A reliable and valid patient‐reported outcomes measure for linear scars. Plast Reconstr Surg. 2009; 123: 1481 ‐ 1489.
dc.identifier.citedreferencePanepinto JA, Pajewski NM, Foerster LM, Hoffmann RG. The performance of the PedsQL generic core scales in children with sickle cell disease. J Pediatr Hematol Oncol. 2008; 30: 666 ‐ 673.
dc.identifier.citedreferenceCostello JM, Mussatto K, Cassedy A, et al. Prediction by clinicians of quality of life for children and adolescents with cardiac disease. J Pediatr. 2015; 166: 679 ‐ 683.
dc.identifier.citedreferenceMarino BS, Tomlinson RS, Wernovsky G, et al. Validation of the pediatric cardiac quality of life inventory. Pediatrics. 2010; 126: 498 ‐ 508.
dc.identifier.citedreferenceHarter S. Manual for the Self‐Perception Profile for Adolescents. Denver, CO: Unversity of Denver; 1988.
dc.identifier.citedreferenceHarter S. Manual for the Self‐Perception Profile for Children. Denver, CO: University of Denver; 1985.
dc.identifier.citedreferenceVarni JW, Seid M, Rode CA. The PedsQL: Measurement model for the pediatric quality of life inventory. Med Care. 1999; 37: 126 ‐ 139.
dc.identifier.citedreferenceGutierrez‐Colina AM, Eaton C, Cheng P, et al. Perceived self‐competence, psychosocial adjustment, and quality of life in pediatric patients with pacemakers. J Dev Behav Pediatr. 2014; 35: 360 ‐ 366.
dc.identifier.citedreferenceDeMaso DR, Lauretti A, Spieth L, et al. Psychosocial factors and quality of life in children and adolescents with implantable cardioverter‐defibrillators. Am J Cardiol. 2004; 93: 582 ‐ 587.
dc.identifier.citedreferenceCzosek RJ, Bonney WJ, Cassedy A, et al. Impact of cardiac devices on the quality of life in pediatric patients. Circ Arrhythm Electrophysiol. 2012; 5: 1064 ‐ 1072.
dc.identifier.citedreferenceCheng P, Gutierrez‐Colina AM, Loiselle KA, et al. Health related quality of life and social support in pediatric patients with pacemakers. J Clin Psychol Med Settings. 2014; 21: 92 ‐ 102.
dc.identifier.citedreferenceVarni JW, Burwinkle TM. The PedsQL as a patient‐reported outcome in children and adolescents with attention‐deficit/hyperactivity disorder: A population‐based study. Health Qual Life Outcomes. 2006; 4: 26. https://doi.org/10.1186/1477-7525-4-26
dc.identifier.citedreferenceUzark K, King E, Cripe L, et al. Health‐related quality of life in children and adolescents with duchenne muscular dystrophy. Pediatrics. 2012; 130: e1559 ‐ e1566.
dc.identifier.citedreferenceCollins K, Runciman M, Rausch CM, Schaffer MS. Toward improved cosmetic results: A novel technique for the placement of a pacemaker or internal cardioverter/defibrillator generators in the axilla of young patients. Pediatr Cardiol. 2009; 30: 1157 ‐ 1160.
dc.identifier.citedreferenceMellion K, Uzark K, Cassedy A, et al. Health‐related quality of life outcomes in children and adolescents with congenital heart disease. J Pediatr. 2014; 164: 781 ‐ 788.
dc.identifier.citedreferenceSears SF, Hazelton AG, Amant JS, et al. Quality of life in pediatric patients with implantable cardioverter defibrillators. Am J Cardiol. 2011; 107: 1023 ‐ 1027.
dc.identifier.citedreferenceLee JC, Shannon K, Boyle NG, Klitzner TS, Bersohn MM. Evaluation of safety and efficacy of pacemaker and defibrillator implantation by axillary incision in pediatric patients. Pac Clin Electrophysiol. 2004; 27: 304 ‐ 307.
dc.identifier.citedreferenceRausch CM, Hughes BH, Runciman M, et al. Axillary versus infraclavicular placement for endocardial heart rhythm devices in patients with pediatric and congenital heart disease. Am J Cardiol. 2010; 106: 1646 ‐ 1651.
dc.identifier.citedreferenceCzosek RJ, Meganathan K, Anderson JB, Knilans TK, Marino BS, Heaton PC. Cardiac rhythm devices in the pediatric population: Utilization and complications. Heart Rhythm. 2012; 9: 199 ‐ 208.
dc.identifier.citedreferenceBurns KM, Evans F, Kaltman JR. Pediatric ICD utilization in the United States from 1997 to 2006. Heart Rhythm. 2011; 8: 23 ‐ 28.
dc.identifier.citedreferenceKoopman HM, Vrijmoet‐Wiersma CM, Langius JN, et al. Psychological functioning and disease‐related quality of life in pediatric patients with an implantable cardioverter defibrillator. Pediatr Cardiol. 2012; 33: 569 ‐ 575.
dc.owningcollnameInterdisciplinary and Peer-Reviewed


Files in this item

Show simple item record

Remediation of Harmful Language

The University of Michigan Library aims to describe library materials in a way that respects the people and communities who create, use, and are represented in our collections. Report harmful or offensive language in catalog records, finding aids, or elsewhere in our collections anonymously through our metadata feedback form. More information at Remediation of Harmful Language.

Accessibility

If you are unable to use this file in its current format, please select the Contact Us link and we can modify it to make it more accessible to you.