Executive summary of the NHLBI State of the Science (SOS) Workshop: Overview and next steps in generating a national blueprint for future research on factor VIII inhibitors
dc.contributor.author | Pipe, Steven W. | |
dc.contributor.author | Sabatino, Denise E. | |
dc.contributor.author | Nugent, Diane J. | |
dc.contributor.author | Hooper, W. Craig | |
dc.contributor.author | Soucie, J. Michael | |
dc.contributor.author | Keith Hoots, W. | |
dc.contributor.author | DiMichele, Donna M. | |
dc.date.accessioned | 2019-08-09T17:15:45Z | |
dc.date.available | WITHHELD_12_MONTHS | |
dc.date.available | 2019-08-09T17:15:45Z | |
dc.date.issued | 2019-07 | |
dc.identifier.citation | Pipe, Steven W.; Sabatino, Denise E.; Nugent, Diane J.; Hooper, W. Craig; Soucie, J. Michael; Keith Hoots, W.; DiMichele, Donna M. (2019). "Executive summary of the NHLBI State of the Science (SOS) Workshop: Overview and next steps in generating a national blueprint for future research on factor VIII inhibitors." Haemophilia 25(4): 610-615. | |
dc.identifier.issn | 1351-8216 | |
dc.identifier.issn | 1365-2516 | |
dc.identifier.uri | https://hdl.handle.net/2027.42/150611 | |
dc.publisher | Wiley Periodicals, Inc. | |
dc.subject.other | research | |
dc.subject.other | blueprint | |
dc.subject.other | haemophilia | |
dc.subject.other | implementation | |
dc.subject.other | inhibitor | |
dc.subject.other | factor VIII | |
dc.title | Executive summary of the NHLBI State of the Science (SOS) Workshop: Overview and next steps in generating a national blueprint for future research on factor VIII inhibitors | |
dc.type | Article | |
dc.rights.robots | IndexNoFollow | |
dc.subject.hlbsecondlevel | Oncology and Hematology | |
dc.subject.hlbtoplevel | Health Sciences | |
dc.description.peerreviewed | Peer Reviewed | |
dc.description.bitstreamurl | https://deepblue.lib.umich.edu/bitstream/2027.42/150611/1/hae13713_am.pdf | |
dc.description.bitstreamurl | https://deepblue.lib.umich.edu/bitstream/2027.42/150611/2/hae13713.pdf | |
dc.identifier.doi | 10.1111/hae.13713 | |
dc.identifier.source | Haemophilia | |
dc.identifier.citedreference | https://grants.nih.gov/grants/guide/pa-files/PAR-18-407.html. Accessed November 17, 2018. | |
dc.identifier.citedreference | https://www.cdc.gov/ncbddd/hemophilia/inhibitors.html. Accessed November 17, 2018. | |
dc.identifier.citedreference | Garagiola I, Palla R, Peyvandi F. Risk factors for inhibitor development in severe hemophilia A. Thromb Res. 2018; 168: 20 ‐ 27. | |
dc.identifier.citedreference | Making strides toward preventing inhibitors in bleeding disorders. https://www.cdc.gov/features/preventing-inhibitors/index.html. Accessed November 17, 2018. | |
dc.identifier.citedreference | Ragni M, George L; on behalf of the Members of Working Group 1. The national blueprint for future factor VIII inhibitor clinical trials: NHLBI State of the Science (SOS) Workshop on factor VIII inhibitors. Haemophilia. 2019; 25 ( 4 ): 581 ‐ 589. | |
dc.identifier.citedreference | Konkle BA, Recht M; on behalf of the Members of Working Group 2. The national blueprint for 21st century data and specimen collection and observational cohort studies: NHLBI State of the Science (SOS) Workshop on factor VIII inhibitors. Haemophilia. 2019; 25 ( 4 ): 590 ‐ 594. | |
dc.identifier.citedreference | Meeks SL, Herzog RW; on behalf of the Members of Working Group 3. The national blueprint for future basic and translational research to understand factor VIII immunogenicity: NHLBI State of the Science (SOS) Workshop on factor VIII inhibitors. Haemophilia. 2019; 25 ( 4 ): 595 ‐ 602. | |
dc.identifier.citedreference | Johnsen JM, Brown DL; on behalf of the Members of Working Group 4. The national blueprint for pregnancy/birth longitudinal cohorts to study factor VIII immunogenicity: NHLBI State of the Science (SOS) Workshop on factor VIII inhibitors. Haemophilia. 2019; 25 ( 4 ): 603 ‐ 609. | |
dc.identifier.citedreference | Wilkinson MD, Dumontier M, Aalbersberg IJ, et al. The FAIR Guiding Principles for scientific data management and stewardship. Sci Data. 2016; 3: 160018. | |
dc.identifier.citedreference | BioLINCC – Biologic Specimen and Data Repository Information Coordinating Center. https://biolincc.nhlbi.nih.gov/home/. Accessed November 17, 2018 | |
dc.identifier.citedreference | https://grants.nih.gov/grants/guide/rfa-files/RFA-HL-18-014.html. Accessed November 17, 2018. | |
dc.identifier.citedreference | https://grants.nih.gov/grants/guide/notice-files/NOT-HL-18-652.html. Accessed November 17, 2018. | |
dc.identifier.citedreference | https://grants.nih.gov/grants/guide/pa-files/PAR-18-768.html. Accessed November 17, 2018. | |
dc.identifier.citedreference | https://grants.nih.gov/grants/guide/rfa-files/RFA-HL-19-027.html. Accessed November 17, 2018. | |
dc.identifier.citedreference | https://grants.nih.gov/grants/guide/notice-files/NOT-HL-18-624.html. Accessed November 17, 2018. | |
dc.identifier.citedreference | https://original-phenxtoolkit.rti.org/index.php. Accessed November 17, 2018. | |
dc.identifier.citedreference | http://www.healthmeasures.net/explore-measurement-systems/nih-toolbox. Accessed November 17, 2018. | |
dc.identifier.citedreference | https://grants.nih.gov/grants/guide/pa-files/PAR-18-683.html. Accessed November 17, 2018. | |
dc.identifier.citedreference | https://grants.nih.gov/grants/guide/pa-files/par-18-406.html. Accessed November 17, 2018. | |
dc.identifier.citedreference | https://grants.nih.gov/grants/guide/pa-files/PAR-18-410.html. Accessed on November 17, 2018. | |
dc.identifier.citedreference | https://researchtraining.nih.gov. Accessed November 17, 2018. | |
dc.identifier.citedreference | Hoos A, Anderson J, Boutin M, et al. Partnering with patients in the development and lifecycle of medicines: a call for action. Ther Innov Regul Sci. 2015; 49 ( 6 ): 929 ‐ 939. | |
dc.identifier.citedreference | Leese J, Macdonald G, Kerr S, et al. ‘Adding another spinning plate to an already busy life’. Benefits and risks in patient partner‐researcher relationships: a qualitative study of patient partner’s experiences in a Canadian health research setting. BMJ Open. 2018; 8 ( 8 ): e022154. | |
dc.identifier.citedreference | Day S, Jonker AH, Lau PL, et al. Recommendations for the design of small population clinical trials. Orphanet J Rare Dis. 2018; 13 ( 1 ): 195. | |
dc.identifier.citedreference | State of the science inhibitors workshop: FVIII inhibitors: generating a national blueprint for future research (day 1). https://videocast.nih.gov/Summary.asp?Live=27769&bhcp=1. Accessed November 17, 2018. | |
dc.identifier.citedreference | State of the science inhibitors workshop: FVIII inhibitors: generating a national blueprint for future research (day 2). https://videocast.nih.gov/summary.asp?Live=277757&bhcp=1. Accessed November 17, 2018. | |
dc.identifier.citedreference | Sabatino DE, Pipe SW, Nugent DJ, et al. Origins and organization of the NHLBI State of the Science (SOS) Workshop: generating a national blueprint for future research on factor VIII inhibitors. Haemophilia. 2019; 25 ( 4 ): 575 ‐ 580. | |
dc.owningcollname | Interdisciplinary and Peer-Reviewed |
Files in this item
Remediation of Harmful Language
The University of Michigan Library aims to describe library materials in a way that respects the people and communities who create, use, and are represented in our collections. Report harmful or offensive language in catalog records, finding aids, or elsewhere in our collections anonymously through our metadata feedback form. More information at Remediation of Harmful Language.
Accessibility
If you are unable to use this file in its current format, please select the Contact Us link and we can modify it to make it more accessible to you.