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Deliberative assessment of surrogate consent in dementia research
dc.contributor.authorKim, Scott Y.H.
dc.contributor.authorUhlmann, Rebecca A.
dc.contributor.authorAppelbaum, Paul S.
dc.contributor.authorKnopman, David S.
dc.contributor.authorKim, H. Myra
dc.contributor.authorDamschroder, Laura
dc.contributor.authorBeattie, Elizabeth
dc.contributor.authorStruble, Laura
dc.contributor.authorDe Vries, Raymond
dc.date.accessioned2020-01-13T15:12:56Z
dc.date.available2020-01-13T15:12:56Z
dc.date.issued2010-07
dc.identifier.citationKim, Scott Y.H.; Uhlmann, Rebecca A.; Appelbaum, Paul S.; Knopman, David S.; Kim, H. Myra; Damschroder, Laura; Beattie, Elizabeth; Struble, Laura; De Vries, Raymond (2010). "Deliberative assessment of surrogate consent in dementia research." Alzheimer’s & Dementia 6(4): 342-350.
dc.identifier.issn1552-5260
dc.identifier.issn1552-5279
dc.identifier.urihttps://hdl.handle.net/2027.42/152905
dc.publisherWiley Periodicals, Inc.
dc.publisherNational Bioethics Advisory Commission
dc.subject.otherResearch ethics
dc.subject.otherSurrogate‐based research
dc.subject.otherAlzheimer’s disease
dc.subject.otherImpaired decision‐making capacity
dc.subject.otherInformed consent
dc.subject.otherDeliberative democracy
dc.subject.otherBioethics
dc.titleDeliberative assessment of surrogate consent in dementia research
dc.typeArticle
dc.rights.robotsIndexNoFollow
dc.subject.hlbsecondlevelNeurology and Neurosciences
dc.subject.hlbtoplevelHealth Sciences
dc.description.peerreviewedPeer Reviewed
dc.description.bitstreamurlhttps://deepblue.lib.umich.edu/bitstream/2027.42/152905/1/alzjjalz200906001.pdf
dc.identifier.doi10.1016/j.jalz.2009.06.001
dc.identifier.sourceAlzheimer’s & Dementia
dc.identifier.citedreferenceCM Clark, JHT Karlawish. Alzheimer disease: current concepts and emerging diagnostic and therapeutic strategies. Ann Intern Med. 138: 2003; 400 – 410
dc.identifier.citedreferenceC Ferri, M Prince, C Brayne, H Brodaty, L Fratiglioni, M Ganguli, et al. Global prevalence of dementia: a Delphi Consensus Study. Lancet. 366: 2005; 2112 – 2117
dc.identifier.citedreferenceJM Orgogozo, S Gilman, JF Dartigues, B Laurent, M Puel, LC Kirby, et al. Subacute meningoencephalitis in a subset of patients with AD after Aβ42 immunization. Neurology. 61: 2003; 46 – 54
dc.identifier.citedreferenceMH Tuszynski, L Thal, M Pay, DP Salmon, S Hoi, R Bakay, et al. A phase 1 clinical trial of nerve growth factor gene therapy for Alzheimer disease. Nat Med. 11: 2005; 551 – 555
dc.identifier.citedreferenceO Okonkwo, HR Griffith, K Belue, S Lanza, EY Zamrini, LE Harrell, et al. Medical decision‐making capacity in patients with mild cognitive impairment. Neurology. 69: 2007; 1528 – 1535
dc.identifier.citedreferenceSYH Kim, ED Caine, GW Currier, A Leibovici, JM Ryan. Assessing the competence of persons with Alzheimer’s disease in providing informed consent for participation in research. Am J Psychiatry. 158: 2001; 712 – 717
dc.identifier.citedreferenceD Hoffmann, J Schwartz. Proxy consent to participation of the decisionally impaired in medical research––Maryland’s policy initiative. J Health Care Law Policy. 1: 1998; 123 – 153
dc.identifier.citedreferenceE Saks, L Dunn, J Wimer, M Gonzales, S Kim. Proxy consent to research: legal landscape. Yale J Health Law Policy Ethics. 8: 2008; 37 – 78
dc.identifier.citedreferenceNational Bioethics Advisory Commission Research involving persons with mental disorders that may affect decisionmaking capacity, volume 1. 1998; National Bioethics Advisory Commission: Rockville, MD
dc.identifier.citedreferenceMaryland Attorney General’s Research Working Group Final report of the Attorney General’s Research Working Group. 1998; Office of the Maryland Attorney General: Baltimore, MD
dc.identifier.citedreferenceNew York Department of Health Advisory Work Group on Human Subject Research Involving the Protected Classes Recommendations on the oversight of human subject research involving the protected classes. 1999; State of New York Department of Health: Albany, NY
dc.identifier.citedreferenceSYH Kim, PS Appelbaum, DV Jeste, JT Olin. Proxy and surrogate consent in geriatric neuropsychiatric research: update and recommendations. Am J Psychiatry. 161: 2004; 797 – 806
dc.identifier.citedreferenceOffice of Human Research Protections. Request for information and comments on research that involves adult individuals with impaired decision‐making capacity. Fed Reg. 72: 2007; 50966 – 50970
dc.identifier.citedreferenceNuffield Council on Bioethics. Dementia: ethical issues (consultation paper). 2008; Nuffield Council on Bioethics: London
dc.identifier.citedreferenceSYH Kim, H Kim, C McCallum, P Tariot. What do people at risk for Alzheimer’s disease think about surrogate consent for research?. Neurology. 65: 2005; 1395 – 1401
dc.identifier.citedreferenceG Bravo, M Paquet, MF Dubois. Opinions regarding who should consent to research on behalf of an older adult suffering from dementia. Int J Soc Res Pract. 2: 2003; 49 – 65
dc.identifier.citedreferenceD Wendler, RA Martinez, D Fairclough, T Sunderland, E Emanuel. Views of potential subjects toward proposed regulations for clinical research with adults unable to consent. Am J Psychiatry. 159: 2002; 585 – 591
dc.identifier.citedreferenceJ Karlawish, J Rubright, D Casarett, M Cary, T Ten Have, P Sankar. Older adults’ attitudes toward enrollment of non‐competent subjects participating in Alzheimer’s research. Am J Psychiatry. 166: 2009; 182 – 188
dc.identifier.citedreferenceS Kim, H Kim, K Langa, J Karlawish, D Knopman, P Appelbaum. Surrogate consent for dementia research: a national survey of older Americans. Neurology. 72: 2009; 149 – 155
dc.identifier.citedreferenceJS Fishkin. Beyond polling alone: the quest for an informed public. Crit Rev. 18: 2006; 157 – 165
dc.identifier.citedreferenceA Gutmann, D Thompson. Deliberating about bioethics. Hastings Cent Rep. 27: 1997; 38 – 41
dc.identifier.citedreferenceJR Muroff, SL Hoerauf, SYH Kim. Is psychiatric research stigmatized? An experimental survey of the public. Schizophr Bull. 32: 2006; 129 – 136
dc.identifier.citedreferenceRS Spieldman, RE McGinnis, WJ Ewens. Transmission test for linkage disequilibrium: the insulin gene region and insulin‐dependence diabetes mellitus. Am J Hum Genet. 52: 1993; 506 – 516
dc.identifier.citedreferenceLS Schneider, JT Olin, SA Lyness, HC Chui. Eligibility of Alzheimer’s disease clinic patients for clinical trials. J Am Geriatr Soc. 45: 1997; 923 – 928
dc.identifier.citedreferenceL Damschroder, J Pritts, M Neblo, R Kalarickal, JW Creswell, R Hayward. Patients, privacy and trust: patients’ willingness to allow researchers to access their medical records. Soc Sci Med. 64: 2007; 223 – 235
dc.identifier.citedreferenceDM Secko, N Preto, S Niemeyer, MM Burgess. Informed consent in biobank research: a deliberative approach to the debate. Soc Sci Med. 68: 2009; 781 – 789
dc.owningcollnameInterdisciplinary and Peer-Reviewed


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