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40 years and beyond for the National Society of Genetic Counselors: Reflections on genetic counseling practice

dc.contributor.authorUhlmann, Wendy R.
dc.contributor.authorHoskovec, Jennifer
dc.contributor.authorFreivogel, Mary
dc.date.accessioned2021-01-05T18:49:37Z
dc.date.availableWITHHELD_12_MONTHS
dc.date.available2021-01-05T18:49:37Z
dc.date.issued2020-12
dc.identifier.citationUhlmann, Wendy R.; Hoskovec, Jennifer; Freivogel, Mary (2020). "40 years and beyond for the National Society of Genetic Counselors: Reflections on genetic counseling practice." Journal of Genetic Counseling 29(6): 888-893.
dc.identifier.issn1059-7700
dc.identifier.issn1573-3599
dc.identifier.urihttps://hdl.handle.net/2027.42/163971
dc.description.abstractThe National Society of Genetic Counselors (NSGC) was established in 1979 and has grown from a small dedicated group of genetic counselors to over 5,000 certified genetic counselors in 2019. During this time period, there have been tremendous advances in the practice of genetic counseling, the availability of genetic testing, and the use of technology. These advances have significantly changed our roles and responsibilities and have contributed to the expansion and diversification of our field in clinical and non‐clinical work settings. The launch of genetic counseling services in prenatal, pediatric, and adult genetics clinics has expanded to many medical specialties. Genetic counselors are also working in industry, public health, policy, education, research, and other work settings. With growth into new areas and the significant increase in the number of practitioners, genetic counselors have established themselves professionally and created opportunities where they can not only contribute to the delivery of quality genetic services, but lead the way. The counseling skills that are a core part of training as genetic counselors will continue to have broad application in diverse work settings and roles. Looking to the future, genetic counselors need to proactively consider tasks that artificial intelligence and other technologies can accomplish so that genetic counselors have the bandwidth to use their expertise to successfully and efficiently meet the growing demands for genetic counseling services. During the 40th anniversary celebration at the 2019 NSGC Annual Conference, three of NSGC’s past presidents reflected on the early years of NSGC and clinical practice, recognized key accomplishments and where the profession stands today, and shared thoughts about the future of genetic counseling. Videos of the actual talks can be accessed by internet search ‘NSGC Celebrates 40 Years’ (https://www.nsgc.org/p/bl/et/blogid=53&blogaid=1162). A timeline of the genetic counseling profession is available at https://www.nsgc.org/page/nsgc‐timeline.
dc.publisherWiley‐Blackwell
dc.subject.other40th Anniversary
dc.subject.otherNational Society of Genetic Counselors
dc.subject.otherhistory
dc.subject.othergenetic counselors
dc.subject.othergenetic counseling
dc.title40 years and beyond for the National Society of Genetic Counselors: Reflections on genetic counseling practice
dc.typeArticle
dc.rights.robotsIndexNoFollow
dc.subject.hlbsecondlevelHuman Genetics
dc.subject.hlbtoplevelHealth Sciences
dc.description.peerreviewedPeer Reviewed
dc.description.bitstreamurlhttp://deepblue.lib.umich.edu/bitstream/2027.42/163971/1/jgc41301_am.pdf
dc.description.bitstreamurlhttp://deepblue.lib.umich.edu/bitstream/2027.42/163971/2/jgc41301.pdf
dc.identifier.doi10.1002/jgc4.1301
dc.identifier.sourceJournal of Genetic Counseling
dc.identifier.citedreferenceReport of 1979 Business Meeting of the NSGC ( 1979 ). Perspectives in Genetic Counseling, 1(4), 1. Retrieved from www.nsgc.org [members only access].
dc.identifier.citedreferenceKeiles, S. ( 1997 ). CyberGenes column: Listserv off to a great start. Perspectives in Genetic Counseling, 19 ( 1 ), 13. Retrieved from www.nsgc.org [members only access].
dc.identifier.citedreferenceMarks, J. ( 1989 ). An Interview with Joan Marks, M.S. Perspectives in Genetic Counseling, 11 ( 3 ), 2 – 3. Retrieved from www.nsgc.org [members only access].
dc.identifier.citedreferenceNational Society of Genetic Counselors, NSGC Leadership. Retrieved from https://www.nsgc.org/page/nsgcleadership
dc.identifier.citedreferenceNational Society of Genetic Counselors ( 2019a ). Professional Status Survey 2019: Demographics & Methodology. 1–21. Retrieved from www.nsgc.org [members only access].
dc.identifier.citedreferenceNational Society of Genetic Counselors ( 2019b ). The First Issue of the Journal of Genetic Counseling [Video file]. Retrieved from https://www.youtube.com/watch?v=Isne7ZslswI.
dc.identifier.citedreferenceNational Society of Genetic Counselors ( 2019c ). First Executive Order Endorsed by NSGC [Video file]. Retrieved from https://www.youtube.com/watch?v=daGpKjFOD9U.
dc.identifier.citedreferenceNational Society of Genetic Counselors ( 2019d ). Professional Status Survey 2019: Work Environment, 1–27. Retrieved from www.nsgc.org [members only access].
dc.identifier.citedreferenceNSGC Diversity and Inclusion Task Force ( 2019 ). Summary of Activities and Recommendations. Retrieved from https://www.nsgc.org/p/bl/et/blogid=53&blogaid=1156.
dc.identifier.citedreferenceNSGC News ( 1984 ). NSGC members prefer to hold Annual Education Conference in conjunction with the American Society of Human Genetics meetings. Perspectives in Genetic Counseling, 6 ( 1 ), 3. Retrieved from www.nsgc.org [members only access].
dc.identifier.citedreferencePear, R. ( 2000 ). Clinton bans use of genetic makeup in federal employment. The New York Times. Retrieved from https://www.nytimes.com/2000/02/09/us/clinton‐bans‐use‐of‐genetic‐makeup‐in‐federal‐employment.html
dc.identifier.citedreferencePetersen, B., & Soliday, C. ( 1998/1999 ). Meeting location debate continues. Perspectives in Genetic Counseling, 20 ( 4 ), 1 – 3. Retrieved from www.nsgc.org [members only access].
dc.identifier.citedreferencePositions Available ( 1979 ). Perspectives in Genetic Counseling, 1(1), 4. Retrieved from www.nsgc.org [members only access].
dc.identifier.citedreferenceSmith, A. C. M. ( 1982 ). “The sermon on the amount:” The status of NSGC finances. Perspectives in Genetic Counseling, 4 ( 1 ), 2. Retrieved from www.nsgc.org [members only access].
dc.identifier.citedreferenceSoliday, C. ( 1998a ). Annual Education Conference: Is it time to stand alone? Perspectives in Genetic Counseling, 20 ( 2 ), 5. Retrieved from www.nsgc.org [members only access].
dc.identifier.citedreferenceSoliday, C. ( 1998b ). Poll results: Future conference site. Perspectives in Genetic Counseling, 20 ( 3 ), 9. [members only access].
dc.identifier.citedreferenceSurvey of clinical DNA diagnostic laboratories ( 1991 ). Reprinted with permission by DNA Testing Subcommittee of Quality Assurance Committee Council of Regional Networks of Genetics. Supplement to Perspectives in Genetic Counseling, 13 ( 1 ), 7 – 10. Retrieved from http://www.nsgc.org [members only access].
dc.identifier.citedreferenceUhlmann, W. R. ( 2000a ). 1999 Presidential address to the National Society of Genetic Counselors. Journal of Genetic Counseling, 9 ( 1 ), 3 – 8. https://doi.org/10.1023/A:1009472921778
dc.identifier.citedreferenceUhlmann, W. R. ( 2000b ). When genes are decoded, who should see the results?; ‘Every one of us is at risk.’ The New York Times. Retrieved from https://www.nytimes.com/2000/02/29/health/when‐genes‐are‐decoded‐whoshould‐see‐the‐results‐every‐one‐of‐us‐is.html
dc.identifier.citedreferenceUhlmann, W. R. ( 2012 ). National Society of Genetic Counselors Natalie Weissberger Paul lifetime achievement award address: The power of connecting. Journal of Genetic Counseling, 21 ( 1 ), 7 – 12. https://doi.org/10.1007/s10897‐011‐9467‐5
dc.identifier.citedreferenceUniversity of Michigan Medical School, Human Genetics, History website. Retrieved from https://medicine.umich.edu/dept/human‐genetics/academics/genetic‐counseling‐program/history
dc.identifier.citedreferenceWalker, A. P. ( 2009 ). The practice of genetic counseling. In W. R. Uhlmann, J. L. Schuette & B. M. Yashar (Eds.), A guide to genetic counseling (pp. 1 – 35 ). Hoboken, NJ: Wiley‐Blackwell.
dc.identifier.citedreferenceAccreditation Council for Genetic Counseling. Program Directory. Retrieved from https://www.gceducation.org/program‐directory/
dc.identifier.citedreferenceAmerican Board of Genetic Counseling. For Diplomates. Retrieved from https://www.abgc.net/for‐diplomates. [email sent to ABGC members on 9/11/19 with data]
dc.identifier.citedreferenceAmerican Board of Genetic Counseling, Mission & History. Retrieved from https://www.abgc.net/about‐abgc/mission‐history/
dc.identifier.citedreferenceAustin, J., Semaka, A., & Hadjipavlou, G. ( 2014 ). Conceptualizing genetic counseling as psychotherapy in the era of genomic medicine. Journal of Genetic Counseling, 23 ( 6 ), 903 – 909. https://doi.org/10.1007/s10897‐014‐9728‐1
dc.identifier.citedreferenceBegleiter, M. L., Collins, D. L., & Greendale, K. ( 1981 ). NSGC Professional Status Survey. Perspectives in Genetic Counseling, 3 ( 4 ), 1 – 2. Retrieved from www.nsgc.org [members only access].
dc.identifier.citedreferenceBureau of Labor Statistics‐ U.S Department of Labor, Bureau of Labor Statistics ( 2017 ). Occupational Outlook Handbook, 2016–2017 edition. Genetic Counselors. Retrieved from http://www.bls.gov/ooh/healthcare/genetic‐counselors.htm
dc.identifier.citedreferenceClinton Whitehouse Archives ( 2000a ). President Clinton: banning genetic discrimination in the federal workplace. Retrieved from https://clintonwhitehouse3.archives.gov/WH/Work/020800.html
dc.identifier.citedreferenceClinton Whitehouse Archives ( 2000b ). President Clinton: announcing the completion of the first survey of the entire human genome. Retrieved from https://clintonwhitehouse3.archives.gov/WH/Work/062600.html.
dc.identifier.citedreferenceCollins, D. L., & Begleiter, M. L. ( 1984 ). Results of the second NSGC Professional Status Survey. Perspectives in Genetic Counseling, 6 ( 3 ), 3 – 4. Retrieved from www.nsgc.org [members only access].
dc.identifier.citedreferenceElkann, A. ( 2018 ). Alain Elkann interviews. Retrieved January 27, 2020, from http://www.alainelkanninterviews.com/minouche‐shafik/
dc.identifier.citedreferenceHeimler, A. ( 1997 ). An oral history of the National Society of Genetic Counselors. Journal of Genetic Counseling, 6 ( 3 ), 315 – 336. https://doi.org/10.1023/A:1025680306348
dc.identifier.citedreferenceKeiles, S. ( 1996/1997 ). CyberGenes column: The Listserv is here! The Listserv is here! Perspectives in Genetic Counseling, 18 ( 4 ), 12. Retrieved from www.nsgc.org [members only access].
dc.owningcollnameInterdisciplinary and Peer-Reviewed


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