WeCareAdvisor™: The development of a caregiver-focused, web-based program to assess and manage behavioral and psychological symptoms of dementia
dc.contributor.author | Kales, Helen C. | |
dc.contributor.author | Gitlin, Laura N. | |
dc.contributor.author | Stanislawski, Barbara | |
dc.contributor.author | Marx, Katherine | |
dc.contributor.author | Turnwald, Molly | |
dc.contributor.author | Watkins, Daphne C. | |
dc.contributor.author | Lyketsos, Constantine G. | |
dc.date.accessioned | 2021-01-05T21:18:47Z | |
dc.date.available | 2021-01-05T21:18:47Z | |
dc.date.issued | 2017 | |
dc.identifier.citation | Alzheimer Disease & Associated Disorders, vol. 31, no. 3, 2017, pp. 263-270 | en_US |
dc.identifier.issn | 0893-0341 | |
dc.identifier.uri | https://hdl.handle.net/2027.42/163990 | |
dc.description.abstract | Background/Objectives Behavioral and psychological symptoms of dementia (BPSD) are nearly universal in dementia and associated with multiple negative outcomes. Current real-world management is largely pharmacologic, despite poor risk/benefit. The WeCareAdvisor™ was designed to enable family caregivers to assess, manage and track BPSD using nonpharmacologic strategies. Design In-depth qualitative data were collected from family caregivers of people with dementia in order to inform: 1) style of approach and “look and feel” of the tool, and 2) the types of psycho-education most needed by caregivers. Results We conducted four focus groups and a technology survey (n=26) as well as additional individual semi-structured interviews (n=12) with family caregivers. Main themes of the qualitative work included: 1) need to minimize difficulty and training time; 2) importance of “one-stop shopping” for information; and 3) necessity for information to be tailored to the caregiver and person with dementia. This information was then combined with effective existing evidence-based behavioral strategies to create a web-based tailored caregiver-support tool. Conclusions The WeCareAdvisor™ was designed with input on functionality and content by end-users, family caregivers. The randomized controlled trial of WeCareAdvisor™ will test whether the tool improves outcomes including caregiver upset and burden and frequency and severity of BPSD. | en_US |
dc.description.sponsorship | NIH (5R01NR014200) | en_US |
dc.language.iso | en_US | en_US |
dc.publisher | Alzheimer Disease & Associated Disorders | en_US |
dc.subject | Neuropsychiatric symptoms of dementia | en_US |
dc.subject | Nonpharmacologic approaches | en_US |
dc.subject | Informal caregivers | en_US |
dc.title | WeCareAdvisor™: The development of a caregiver-focused, web-based program to assess and manage behavioral and psychological symptoms of dementia | en_US |
dc.type | Article | en_US |
dc.subject.hlbsecondlevel | Social Work | |
dc.subject.hlbtoplevel | Social Sciences | |
dc.description.peerreviewed | Peer Reviewed | en_US |
dc.contributor.affiliationum | Department of Psychiatry | en_US |
dc.contributor.affiliationum | School of Social Work | en_US |
dc.contributor.affiliationother | Department of Veterans Affairs, HSR&D Center for Clinical Management Research (CCMR), Ann Arbor, Michigan | en_US |
dc.contributor.affiliationother | Geriatric Research, Education and Clinical Center (GRECC), VA Ann Arbor Healthcare System, Ann Arbor, Michigan | en_US |
dc.contributor.affiliationother | Department of Community Public Health, School of Nursing, Johns Hopkins University, Baltimore, Maryland | en_US |
dc.contributor.affiliationother | Division of Geriatrics and Gerontology, School of Medicine, Johns Hopkins University, Baltimore, Maryland | en_US |
dc.contributor.affiliationother | Center for Innovative Care on Aging, Johns Hopkins University, Baltimore, Maryland | en_US |
dc.contributor.affiliationother | Department of Psychiatry and Behavioral Sciences, Johns Hopkins Bayview and Johns Hopkins University, Baltimore, Maryland | en_US |
dc.contributor.affiliationumcampus | Ann Arbor | en_US |
dc.identifier.pmid | 27849639 | |
dc.description.bitstreamurl | http://deepblue.lib.umich.edu/bitstream/2027.42/163990/1/Kales et al_WeCareAdvisor_Alzheimer Journal_Open.pdf | |
dc.identifier.doi | 10.1097/WAD.0000000000000177 | |
dc.identifier.source | Alzheimer Disease & Associated Disorders | en_US |
dc.owningcollname | Social Work, School of (SSW) |
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