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Civil rights as patient experience: How healthcare organizations handle discrimination complaints

dc.contributor.authorKirkland, Anna
dc.contributor.authorHyman, Mikell
dc.date.accessioned2021-06-02T21:06:07Z
dc.date.available2022-07-02 17:06:06en
dc.date.available2021-06-02T21:06:07Z
dc.date.issued2021-06
dc.identifier.citationKirkland, Anna; Hyman, Mikell (2021). "Civil rights as patient experience: How healthcare organizations handle discrimination complaints." Law & Society Review 55(2): 273-295.
dc.identifier.issn0023-9216
dc.identifier.issn1540-5893
dc.identifier.urihttps://hdl.handle.net/2027.42/167779
dc.description.abstractThe nondiscrimination clause of the Affordable Care Act, known as Section 1557, formally expanded patients’ civil rights in nearly every healthcare setting in the United States in 2010. Regulations required healthcare organizations to name a person to handle grievances and set up an internal grievance process for resolving them. Drawing on interviews with 58 healthcare grievance handlers, this study examines how healthcare organizations respond to patients’ discrimination complaints. We find that organizations incorporated the new right into preexisting complaint and grievance procedures, treating possible patient civil rights violations as patient experience problems. Grievance handlers smooth over problems using customer service strategies. These procedures diminish the efforts of policymakers to expand civil rights protections in healthcare. For civil rights to provoke real organizational change, discrimination complaints would need to be handled by professionals attuned to rights consciousness.
dc.publisherJohn Wiley & Sons, Inc.
dc.titleCivil rights as patient experience: How healthcare organizations handle discrimination complaints
dc.typeArticle
dc.rights.robotsIndexNoFollow
dc.subject.hlbsecondlevelLaw and Legal Studies
dc.subject.hlbtoplevelGovernment Information and Law
dc.description.peerreviewedPeer Reviewed
dc.description.bitstreamurlhttp://deepblue.lib.umich.edu/bitstream/2027.42/167779/1/lasr12554_am.pdf
dc.description.bitstreamurlhttp://deepblue.lib.umich.edu/bitstream/2027.42/167779/2/lasr12554.pdf
dc.identifier.doi10.1111/lasr.12554
dc.identifier.sourceLaw & Society Review
dc.identifier.citedreferenceMcCann, Michael. 2014. “ The Unbearable Lightness of Rights: On Sociolegal Inquiry in the Global Era.” Law and Society Review 48 ( 2 ): 245 – 73. https://doi.org/10.1111/lasr.12075
dc.identifier.citedreferenceKellogg, Katherine C. 2014. “ Brokerage Professions and Implementing Reform in an Age of Experts.” American Sociological Review 79 ( 5 ): 912 – 41.
dc.identifier.citedreferenceKelly, Erin L. 2010. “ Failure to Update: An Institutional Perspective on Noncompliance with the Family and Medical Leave Act.” Law and Society Review 44 ( 1 ): 33 – 66.
dc.identifier.citedreferenceChen, Anthony S. 2009. The Fifth Freedom: Jobs, Politics, and Civil Rights in the United States, 1941–1972. Princeton, NJ: Princeton University Press.
dc.identifier.citedreferenceMcGowan, Angela K., Mary M. Lee, Cristina M. Meneses, Jane Perkins, and Mara Youdelman. 2016. “ Civil Rights Laws as Tools to Advance Health in the Twenty‐First Century.” Annual Review of Public Health 37: 185 – 204. https://doi.org/10.1146/annurev-publhealth-032315-021926
dc.identifier.citedreferenceNader, Laura. 1974. “ Up the Anthropologist: Perspectives Gained From Studying Up.” In Reinventing Anthropology, edited by Dell Hymes, 284 – 311. New York: Vintage Books.
dc.identifier.citedreferenceNational Center for Transgender Equality. 2015. 2015 U.S. Transgender Survey Report.
dc.identifier.citedreferenceNelson, Alondra. 2013. Body and Soul: The Black Panther Party and the Fight against Medical Discrimination. Minneapolis, MN: University of Minnesota Press.
dc.identifier.citedreferenceOut2Enroll. 2020. Summary of Findings: 2020 Marketplace Plan Compliance with Section 1557. Out2Enroll.org.
dc.identifier.citedreferenceRabinovich‐Einy, Orna. 2007. “ Beyond IDR: Resolving Hospital Disputes and Healing Ailing Organizations through ITR.” St. John’s Law Review 81 ( 1/2 ): 173 – 202.
dc.identifier.citedreferenceReay, Trish, Elizabeth Goodrick, Ann Casebeer, and C.R. Bob Hinings. 2013. “ Legitimizing New Practices in Primary Health Care.” Health Care Management Review 38 ( 1 ): 9 – 19. https://doi.org/10.1097/HMR.0b013e31824501b6
dc.identifier.citedreferenceRobbennolt, Jennifer K. 2009. “ Apologies and Medical Error.” Clinical Orthopaedics and Related Research 467 ( 2 ): 376 – 82. https://doi.org/10.1007/s11999-008-0580-1
dc.identifier.citedreferenceSilbey, Susan S. 2005. “ After Legal Consciousness.” Annual Review of Law and Social Science 1 ( 1 ): 323 – 68. https://doi.org/10.1146/annurev.lawsocsci.1.041604.115938
dc.identifier.citedreferenceStevens, Andrew C. 2015. “ The Future of Healthcare Discrimination LitigationSection 1557 of the ACA.” Arnall Golden Gregory LLP. Accessed June 17, 2020. https://www.agg.com/news-insights/publications/the-future-of-healthcare-discrimination-litigationsection-1557-of-the-aca-08-17-2015/.
dc.identifier.citedreferenceSwidler, Ann. 1986. “ Culture in Action: Symbols and Strategies.” American Sociological Review 51 ( 2 ): 273 – 86. https://doi.org/10.2307/2095521
dc.identifier.citedreferenceWang, Timothy, Elizabeth Kelman, and Sean Cahill. 2016. What the New Affordable Care Act Nondiscrimination Rule Means for Providers and LGBT Patients. Boston, MA: Fenway Health.
dc.identifier.citedreferenceWatson, Sidney D. 2011. “ Section 1557 of the Affordable Care Act: Civil Rights, Health Reform, Race, and Equity.” Howard Law Journal 3: 855 – 86.
dc.identifier.citedreferenceYoung, Cristobal, and Xinxiang Chen. 2020. “ Patients as Consumers in the Market for Medicine: The Halo Effect of Hospitality.” Social Forces 99: 504 – 31. https://doi.org/10.1093/sf/soaa007
dc.identifier.citedreferenceZussman, Robert. 1992. Intensive Care: Medical Ethics and the Medical Profession. Chicago, IL: University of Chicago Press.
dc.identifier.citedreferenceAnspach, Renee R. 1997. Deciding Who Lives: Fateful Choices in the Intensive‐Care Nursery. Berkeley, CA: University of California Press.
dc.identifier.citedreferenceBerrey, Ellen, Robert L. Nelson, and Laura Beth Nielsen. 2017. Rights on Trial: How Workplace Discrimination Law Perpetuates Inequality. Chicago, IL: University of Chicago Press.
dc.identifier.citedreferenceBurris, Scott, and Evan Anderson. 2013. “ Legal Regulation of Health‐Related Behavior: A Half Century of Public Health Law Research.” Annual Review of Law and Social Science 9 ( 1 ): 95 – 117. https://doi.org/10.1146/annurev-lawsocsci-102612-134011
dc.identifier.citedreferenceCenters for Medicare and Medicaid Services. 2008. State Operations Manual, Appendix A ‐ Survey Protocol, Regulations and Interpretive Guidelines for Hospitals, §482.13(a)(2). https://www.cms.gov/Regulations‐and‐Guidance/Guidance/Manuals/downloads/som107ap_a_hospitals.pdf
dc.identifier.citedreferenceCenters for Medicare and Medicaid Services. 2019a. “ Grievances (Medicare Managed Care).” Accessed August 6, 2019. https://www.cms.gov/Medicare/Appeals-and-Grievances/MMCAG/Grievances.html.
dc.identifier.citedreferenceCenters for Medicare and Medicaid Services. 2019b. “ Grievances (Prescription Drugs).” Accessed August 6, 2019. https://www.cms.gov/Medicare/Appeals-and-Grievances/MedPrescriptDrugApplGriev/Grievances.html.
dc.identifier.citedreferenceChiarello, Elizabeth. 2013. “ How Organizational Context Affects Bioethical Decision‐Making: Pharmacists’ Management of Gatekeeping Processes in Retail and Hospital Settings.” Social Science and Medicine 98: 319 – 29.
dc.identifier.citedreferenceChiarello, Elizabeth. 2015. “ The War on Drugs Comes to the Pharmacy Counter: Frontline Work in the Shadow of Discrepant Institutional Logics.” Law and Social Inquiry 40 ( 1 ): 86 – 122.
dc.identifier.citedreferenceDepartment of Education Office for Civil Rights. 2018. “ Developing Effective Grievance Procedures.” Accessed August 6, 2019. https://www2.ed.gov/about/offices/list/ocr/grievance.html.
dc.identifier.citedreferenceDepartment of Health and Human Services. 2016. Nondiscrimination in Health Programs and Activities. Vol. FR 31375.
dc.identifier.citedreferenceDepartment of Health and Human Services. 2020. Nondiscrimination in Health and Health Education Programs or Activities, Delegation of Authority.
dc.identifier.citedreferenceDiBenigno, Julia, and Katherine C. Kellogg. 2014. “ Beyond Occupational Differences: The Importance of Cross‐Cutting Demographics and Dyadic Toolkits for Collaboration in a U.S. Hospital.” Administrative Science Quarterly 59 ( 3 ): 375 – 408. https://doi.org/10.1177/0001839214538262
dc.identifier.citedreferenceDobbin, Frank. 2009. Inventing Equal Opportunity. Princeton, NJ: Princeton University Press.
dc.identifier.citedreferenceEdelman, Lauren B. 2016. Working Law: Courts, Corporations, and Symbolic Civil Rights. Chicago, IL: University of Chicago Press.
dc.identifier.citedreferenceEdelman, Lauren B., Howard S. Erlanger, and John Lande. 1993. “ Internal Dispute Resolution: The Transformation of Civil Rights in the Workplace.” Law and Socirty Review 27: 497.
dc.identifier.citedreferenceEditors. 1970. “ Complaints in Hospital.” The British Medical Journal 1 ( 5693 ): 380 – 1.
dc.identifier.citedreferenceEngel, David M. 2016. The Myth of the Litigious Society. Chicago, IL: University of Chicago Press.
dc.identifier.citedreferenceEngland, Paula. 2005. “ Emerging Theories of Care Work.” Annual Review of Sociology 31 ( 1 ): 381 – 99. https://doi.org/10.1146/annurev.soc.31.041304.122317
dc.identifier.citedreferenceEwick, Patricia, and Susan S. Silbey. 1998. The Common Place of Law: Stories from Everyday Life. Chicago, IL: University of Chicago Press.
dc.identifier.citedreferenceFlood, Ann Barry, and Mary L. Fennell. 1995. “ Through the Lenses of Organizational Sociology: The Role of Organizational Theory and Research in Conceptualizing and Examining Our Health Care System.” Journal of Health and Social Behavior ( Extra Issue ), 154 – 69. https://doi.org/10.2307/2626962
dc.identifier.citedreferenceGoffman, Erving. 1952. “ On Cooling the Mark Out: Some Aspects of Adaptation to Failure.” Psychiatry 15 ( 4 ): 451 – 63. https://doi.org/10.1080/00332747.1952.11022896
dc.identifier.citedreferenceGrigg, Amanda, and Anna Kirkland. 2018. “ Health.” In The Oxford Handbook of Feminist Theory, edited by Lisa Disch and Mary Hawkesworth, 326 – 45. Oxford: Oxford University Press.
dc.identifier.citedreferenceHeimer, Carol A. 1996. “ Explaining Variation in the Impact of Law: Organizations, Institutions, and Professions.” Studies in Law, Politics, and Society 15: 29 – 59.
dc.identifier.citedreferenceHeimer, Carol A. 1999. “ Competing Institutions: Law, Medicine, and Family in Neonatal Intensive Care.” Law and Society Review: 33 ( 1 ), 17 – 66.
dc.identifier.citedreferenceHeimer, Carol A., and Lisa R. Staffen. 1998. For the Sake of the Children: The Social Organization of Responsibility in the Hospital and the Home. Chicago, IL: University of Chicago Press.
dc.identifier.citedreferenceHeimer, Carol A., and Mitchell L. Stevens. 1997. “ Caring for the Organization: Social Workers as Frontline Risk Managers in Neonatal Intensive Care Units.” Work and Occupations 24 ( 2 ): 133 – 63.
dc.identifier.citedreferenceHorowitz, Ruth. 2012. In the Public Interest: Medical Licensing and the Disciplinary Process. New Brunswick, NJ: Rutgers University Press.
dc.identifier.citedreferenceHyman, Mikell. 2020. “ When Policy Feedback Fails: ‘Collective Cooling’ in Detroit’s Municipal Bankruptcy.” Theory and Society 49 ( 4 ): 633 – 68. https://doi.org/10.1007/s11186-020-09387-0
dc.identifier.citedreferenceInstitute of Medicine. 2001. Crossing the Quality Chasm: A New Health System for the 21st Century ‐ Google Search. Washington, DC: National Academies Press.
dc.identifier.citedreferenceJenness, Valerie, and Ryken Grattet. 2005. “ The Law‐in‐Between: The Effects of Organizational Perviousness on the Policing of Hate Crime.” Social Problems 52 ( 3 ): 337 – 59.
dc.identifier.citedreferenceKahn, Charles, and Claudia Salzberg. 2019. “ The Next Generation of Measuring Patient Experience.” Health Affairs Blog. Accessed July 18, 2019. https://www.healthaffairs.org/do/10.1377/hblog20190307.766083/full/.
dc.identifier.citedreferenceKeith, Katie. 2020. “ HHS Strips Gender Identity, Sex Stereotyping, Language Access Protections from ACA Anti‐Discrimination Rule.” Health Affairs Blog. Accessed June 17, 2020. https://www.healthaffairs.org/do/10.1377/hblog20200613.671888/full/.
dc.identifier.citedreferenceKellogg, Katherine C. 2010. “ Hot Lights and Cold Steel: Cultural and Political Toolkits for Practice Change in Surgery.” Organization Science 22 ( 2 ): 482 – 502. https://doi.org/10.1287/orsc.1100.0539
dc.identifier.citedreferenceKellogg, Katherine C. 2011. Challenging Operations: Medical Reform and Resistance in Surgery. Chicago, IL: University of Chicago Press.
dc.identifier.citedreferenceLloyd‐Bostock, Sally. 1992. “ Attributions and Apologies in Letters of Complaint to Hospitals and Letters of Response.” In Attributions, Accounts, and Close Relationships, edited by J.H. Harvey, T.L. Orbuch, and A.L. Weber, 209 – 20. New York, NY: Springer.
dc.identifier.citedreferenceLloyd‐Bostock, Sally, and Linda Mulcahy. 1994. “ The Social Psychology of Making and Responding to Hospital Complaints: An Account Model of Complaint Processes.” Law and Policy 16 ( 2 ): 123 – 47. https://doi.org/10.1111/j.1467-9930.1994.tb00120.x
dc.identifier.citedreferenceMcAdam, Doug, and W. Richard Scott. 2005. “ Organizations and Movements.” In Social Movements and Organization Theory, edited by G.F. Davis, D. McAdam, W.R. Scott, and M.N. Zald, 4 – 40. Cambridge: Cambridge University Press.
dc.working.doiNOen
dc.owningcollnameInterdisciplinary and Peer-Reviewed


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