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Systematic review of family engagement interventions in neonatal, paediatric, and adult ICUs
dc.contributor.authorMcAndrew, Natalie S.
dc.contributor.authorJerofke-Owen, Teresa
dc.contributor.authorFortney, Christine A.
dc.contributor.authorCosta, Deena K.
dc.contributor.authorHetland, Breanna
dc.contributor.authorGuttormson, Jill
dc.contributor.authorHarding, Eric
dc.date.accessioned2022-06-01T20:30:25Z
dc.date.available2023-06-01 16:30:23en
dc.date.available2022-06-01T20:30:25Z
dc.date.issued2022-05
dc.identifier.citationMcAndrew, Natalie S.; Jerofke-Owen, Teresa ; Fortney, Christine A.; Costa, Deena K.; Hetland, Breanna; Guttormson, Jill; Harding, Eric (2022). "Systematic review of family engagement interventions in neonatal, paediatric, and adult ICUs." Nursing in Critical Care 27(3): 296-325.
dc.identifier.issn1362-1017
dc.identifier.issn1478-5153
dc.identifier.urihttps://hdl.handle.net/2027.42/172837
dc.description.abstractAims and objectivesThe purpose of this systematic review was to evaluate interventions that have been used to engage families in direct care activities (active family engagement) in adult, paediatric, and neonatal intensive care unit (ICU) settings.BackgroundFamily engagement is universally advocated across ICU populations and practice settings; however, appraisal of the active family engagement intervention literature remains limited.Search strategyOvid Medline, PsycArticles & PsycInfo, Scopus, and CINAHL were searched for family interventions that involved direct care of the patient to enhance the psychological, physical, or emotional well-being of the patient or family in neonatal, paediatric, or adult ICUs.Inclusion/exclusion criteriaStudies were included if an active family engagement intervention was evaluated. Studies were excluded if they were not published in English or reported non-interventional research.ResultsA total of 6210 abstracts were screened and 19 studies were included. Most studies were of low to moderate quality and were conducted in neonatal ICUs within the United States. Intervention dosage and frequency varied widely across studies. The interventions focused on developmental care (neonatal ICU) and involved families in basic patient care. Family member outcomes measured included satisfaction, stress, family-centred care, confidence, anxiety, and depression. Most studies found improvements in one or more outcomes.ConclusionsThere is a paucity of literature about active family engagement interventions, especially in adult and paediatric populations. The optimal dosage and frequency of family engagement interventions remains unknown. Our systematic review found that data are limited on the relationship between family engagement and patient outcomes, and provides a timely appraisal to guide future research.Relevance to Clinical PracticeFurther research on the efficacy of family engagement interventions is warranted. The translation of active family engagement interventions into clinical practice should also be supported.
dc.publisherWiley Periodicals, Inc.
dc.publisherBlackwell Publishing Ltd
dc.subject.otherfamily-centred care
dc.subject.otherrole of family in ICU
dc.subject.otherfamily care in critical care
dc.subject.otherfamily engagement
dc.subject.otherfamily involvement
dc.subject.otherintensive care
dc.titleSystematic review of family engagement interventions in neonatal, paediatric, and adult ICUs
dc.typeArticle
dc.rights.robotsIndexNoFollow
dc.description.peerreviewedPeer Reviewed
dc.description.bitstreamurlhttp://deepblue.lib.umich.edu/bitstream/2027.42/172837/1/nicc12564_am.pdf
dc.description.bitstreamurlhttp://deepblue.lib.umich.edu/bitstream/2027.42/172837/2/nicc12564.pdf
dc.identifier.doi10.1111/nicc.12564
dc.identifier.sourceNursing in Critical Care
dc.identifier.citedreferenceMarshall AP, Wake E, Weisbrodt L, Dhaliwal R, Spencer A, Heyland DK. A multi-faceted, family-centred nutrition intervention to optimise nutrition intake of critically ill patients: the OPTICS feasibility study. Aust Crit Care. 2016; 29: 68 - 76.
dc.identifier.citedreferenceMatricardi S, Agostino R, Fedeli C, Montirosso R. Mothers are not fathers: differences between parents in the reduction of stress levels after a parental intervention in a NICU. Acta Paediatr. 2013; 102: 8 - 14.
dc.identifier.citedreferenceMelnyk BM, Feinstein NF, Alpert-Gillis L, et al. Reducing premature infants’ length of stay and improving parents’ mental health outcomes with the creating opportunities for parent empowerment (COPE) neonatal intensive care unit program: a randomized, controlled trial. Pediatrics. 2006; 118: e1414 - e1427.
dc.identifier.citedreferenceNoergaard B, Ammentorp J, Garne E, Fenger-Gron J, Kofoed P-E. Fathersʼ stress in a neonatal intensive care unit. Adv Neonatal Care. 2018 ). 18 ( 5 ), 413 – 422.
dc.identifier.citedreferencevan der Pal S, Maguire C, le Cessie S, Wit J, Walther F, Bruil J. Parental experiences during the first period at the neonatal unit after two developmental care interventions. Acta Paediatr. 2007; 96: 1611 - 1616.
dc.identifier.citedreferenceWelch MG, Halperin MS, Austin J, et al. Depression and anxiety symptoms of mothers of preterm infants are decreased at 4 months corrected age with Family Nurture Intervention in the NICU. Arch Womens Ment Health. 2016; 19: 51 - 61.
dc.identifier.citedreferenceSarin E, Maria A. Acceptability of a family-centered newborn care model among providers and receivers of care in a public health setting: a qualitative study from India. BMC Health Serv Res. 2019; 19: 184. https://doi.org/10.1186/s12913-019-4017-1.
dc.identifier.citedreferenceKuntaros S, Wichiencharoen K, Prasopkittikun T, Staworn D. Effects of family-centered care on self-efficacy in participatory involvement in child care and satisfaction of mothers in PICU. Thai J Nurs Res. 2007; 11: 203 - 213.
dc.identifier.citedreferenceBlack P, Boore JRP, Parahoo K. The effect of nurse-facilitated family participation in the psychological care of the critically ill patient: nurse-facilitated family participation in psychological care. J Adv Nurs. 2011; 67: 1091 - 1101.
dc.identifier.citedreferenceDavidson JE, Daly BJ, Agan D, Brady NR, Higgins PA. Facilitated sensemaking: a feasibility study for the provision of a family support program in the intensive care unit. Crit Care Nurs Q. 2010; 33: 177 - 189.
dc.identifier.citedreferenceMitchell M, Chaboyer W, Burmeister E, Foster M. Positive effects of a nursing intervention on family-centered care in adult critical care. Am J Crit Care. 2009; 18: 543 - 552.
dc.identifier.citedreferenceCochrane Consumers and Communication Review Group. Cochrane Consumers and Communication Review Group: data synthesis and analysis; 2013. http://cccrg.cochrane.org. Accessed January 4, 2018.
dc.identifier.citedreferenceAls H. Toward a synactive theory of development: promise for the assessment and support of infant individuality. Infant Ment Health J. 1982; 3: 229 - 243.
dc.identifier.citedreferenceDunst CJ, Trivette CM. Empowerment, effective helpgiving practices and family-centered care. Pediatr Nurs. 1996; 22: 334 - 337. 343.
dc.identifier.citedreferenceDavidson JE. Facilitated sensemaking: a strategy and new middle-range theory to support families of intensive care unit patients. Crit Care Nurse. 2010; 30: 28 - 39.
dc.identifier.citedreferenceFernandes A, Jaeger MS, Chudow M. Post–intensive care syndrome: a review of preventive strategies and follow-up care. Am J Health Syst Pharm. 2019; 76: 119 - 122.
dc.identifier.citedreferenceNeedham DM, Davidson J, Cohen H, et al. Improving long-term outcomes after discharge from intensive care unit: report from a stakeholders’ conference*. Crit Care Med. 2012; 40: 502 - 509.
dc.identifier.citedreferenceIreland J, Khashu M, Cescutti-Butler L, van Teijlingen E, Hewitt-Taylor J. Experiences of fathers with babies admitted to neonatal care units: a review of the literature. J Neonatal Nurs. 2016; 22: 171 - 176.
dc.identifier.citedreferenceReid S, Bredemeyer S, Chiarella M. Integrative review of parents’ perspectives of the nursing role in neonatal family-centered care. J Obstet Gynecol Neonatal Nurs. 2019; 48: 408 - 417.
dc.identifier.citedreferenceGrzywacz JG, Ganong L. Issues in families and health research. Fam Relat. 2009; 58: 373 - 378.
dc.identifier.citedreferenceDrenkard K, Swartwout E, Deyo P, O’Neil MB. Interactive care model: a framework for more fully engaging people in their healthcare. J Nurs Adm. 2015; 45: 503 - 510.
dc.identifier.citedreferenceCraig JW, Glick C, Phillips R, Hall SL, Smith J, Browne J. Recommendations for involving the family in developmental care of the NICU baby. J Perinatol. 2015; 35: S5 - S8.
dc.identifier.citedreferencevan der Horst FCP, van der Veer R. Loneliness in infancy: Harry Harlow, John Bowlby and issues of separation. Integr Psychol Behav Sci. 2008; 42: 325 - 335.
dc.identifier.citedreferenceHarrison TM. Family-centered pediatric nursing care: state of the science. J Pediatr Nurs. 2010; 25: 335 - 343.
dc.identifier.citedreferenceDavidson JE, Hudson CA. Family-centered care: a reflection. Crit Care Nurs Clin North Am. 2020; 32: xv - xx.
dc.identifier.citedreferenceFeeley N, Genest C, Niela-Vilén H, Charbonneau L, Axelin A. Parents and nurses balancing parent-infant closeness and separation: a qualitative study of NICU nurses’ perceptions. BMC Pediatr. 2016; 16: 134. https://doi.org/10.1186/s12887-016-0663-1.
dc.identifier.citedreferenceDoucette E, Sanzone L, Albahouth A, De Luca W, Santella G, Wang K. The role of technology in enhancing a family-centred approach to care: navigating nurse-family communication in the ICU. Can Crit Care Nurs J. 2019; 30: 29 - 34.
dc.identifier.citedreferenceDavidson JE, Harvey MA. Patient and family post-intensive care syndrome. AACN Adv Crit Care. 2016; 27: 184 - 186.
dc.identifier.citedreferenceCarman KL, Dardess P, Maurer M, et al. Patient and family engagement: a framework for understanding the elements and developing interventions and policies. Health Aff. 2013; 32: 223 - 231.
dc.identifier.citedreferenceBrown SM, Rozenblum R, Aboumatar H, et al. Defining patient and family engagement in the intensive care unit. Am J Respir Crit Care Med. 2015; 191: 358 - 360.
dc.identifier.citedreferenceOlding M, McMillan SE, Reeves S, Schmitt MH, Puntillo K, Kitto S. Patient and family involvement in adult critical and intensive care settings: a scoping review. Health Expect. 2016; 19: 1183 - 1202.
dc.identifier.citedreferenceDavidson JE, Aslakson R, Long AC, et al. Guidelines for family-centered care in the neonatal, pediatric, and adult ICU. Crit Care Med. 2017; 45: 103 - 128.
dc.identifier.citedreferenceKleinpell R, Zimmerman J, Vermoch KL, et al. Promoting family engagement in the ICU: experience from a national collaborative of 63 ICUs. Crit Care Med. 2019; 47: 1692 - 1698.
dc.identifier.citedreferenceKleinpell R, Heyland DK, Lipman J, et al. Patient and family engagement in the ICU: report from the task force of the World Federation of Societies of Intensive and Critical Care Medicine. J Crit Care. 2018; 48: 251 - 256.
dc.identifier.citedreferenceÅgård AS, Hofhuis JGM, Koopmans M, et al. Identifying improvement opportunities for patient- and family-centered care in the ICU: using qualitative methods to understand family perspectives. J Crit Care. 2019; 49: 33 - 37.
dc.identifier.citedreferenceAgency for Healthcare Research and Quality. Strategies for Patient, Family, and Caregiver Engagement. Technical Brief. Rockville, MD: Agency for Healthcare Research and Quality; 2020. https://effectivehealthcare.ahrq.gov/sites/default/files/pdf/patient-engagement-draft-technical-brief.pdf.
dc.identifier.citedreferenceHaines KJ, Kelly P, Fitzgerald P, Skinner EH, Iwashyna TJ. The untapped potential of patient and family engagement in the organization of critical care. Crit Care Med. 2017; 45: 899 - 906.
dc.identifier.citedreferenceGoldfarb MJ, Bibas L, Bartlett V, Jones H, Khan N. Outcomes of patient- and family-centered care interventions in the ICU: a systematic review and meta-analysis. Crit Care Med. 2017; 45: 1751 - 1761.
dc.identifier.citedreferenceDavidson JE, Powers K, Hedayat KM, et al. Clinical practice guidelines for support of the family in the patient-centered intensive care unit: American College of Critical Care Medicine Task Force 2004–2005. Crit Care Med. 2007; 35: 605 - 622.
dc.identifier.citedreferenceMirlashari J, Brown H, Fomani FK, de Salaberry J, Zadeh TK, Khoshkhou F. The challenges of implementing family-centered care in NICU from the perspectives of physicians and nurses. J Pediatr Nurs. 2020; 50: e91 - e98.
dc.identifier.citedreferenceUmberger E, Canvasser J, Hall SL. Enhancing NICU parent engagement and empowerment. Semin Pediatr Surg. 2018; 27: 19 - 24.
dc.identifier.citedreferenceHamilton R, Kleinpell R, Lipman J, Davidson JE. International facilitators and barriers to family engagement in the ICU: results of a qualitative analysis. J Crit Care. 2020; 58: 72 - 77.
dc.identifier.citedreferenceKiwanuka F, Shayan SJ, Tolulope AA. Barriers to patient and family-centred care in adult intensive care units: a systematic review. Nurs Open. 2019 ). 6, 676 – 684. https://doi.org/10.1002/nop2.253.
dc.identifier.citedreferenceHetland B, McAndrew N, Perazzo J, Hickman R. A qualitative study of factors that influence active family involvement with patient care in the ICU: survey of critical care nurses. Intens Crit Care Nur. 2018; 44: 67 - 75.
dc.identifier.citedreferenceLiberati A, Altman DG, Tetzlaff J, et al. The PRISMA statement for reporting systematic reviews and meta-analyses of studies that evaluate health care interventions: explanation and elaboration. PLoS Med. 2009; 6: e1000100.
dc.identifier.citedreferenceOuzzani M, Hammady H, Fedorowicz Z, Elmagarmid A. Rayyan—a web and mobile app for systematic reviews. Syst Rev. 2016; 5: 210. https://doi.org/10.1186/s13643-016-0384-4.
dc.identifier.citedreferenceCochrane. Data extraction forms. Data-extraction-forms; 2020. Accessed February 13, 2020. https://dplp.cochrane.org/data-extraction-forms.
dc.identifier.citedreferenceGuyatt GH, Oxman AD, Vist GE, et al. GRADE: an emerging consensus on rating quality of evidence and strength of recommendations. BMJ. 2008; 336: 924 - 926.
dc.identifier.citedreferenceByers JF, Lowman LB, Jennifer F, et al. A quasi-experimental trial on individualized, developmentally supportive family-centered care. J Obstet Gynecol Neonatal Nurs. 2006; 35: 105 - 115.
dc.identifier.citedreferenceCooper LG, Gooding JS, Gallagher J, Sternesky L, Ledsky R, Berns SD. Impact of a family-centered care initiative on NICU care, staff and families. J Perinatol. 2007; 27: S32 - S37.
dc.identifier.citedreferenceDe Bernardo G, Svelto M, Giordano M, Sordino D, Riccitelli M. Supporting parents in taking care of their infants admitted to a neonatal intensive care unit: a prospective cohort pilot study. Ital J Pediatr. 2017; 43: 36. https://doi.org/10.1186/s13052-017-0352-1.
dc.identifier.citedreferenceFranck LS, Oulton K, Nderitu S, Lim M, Fang S, Kaiser A. Parent involvement in pain management for NICU infants: a randomized controlled trial. Pediatrics. 2011 ). 128 ( 3 ), 510 – 518. https://doi.org/10.1542/peds.2011-0272.
dc.identifier.citedreferenceHoffenkamp HN, Tooten A, Hall RAS, et al. Effectiveness of hospital-based video interaction guidance on parental interactive behavior, bonding, and stress after preterm birth: a randomized controlled trial. J Consult Clin Psychol. 2015; 83: 416 - 429.
dc.identifier.citedreferenceHolditch-Davis D, White-Traut R, Levy J, Williams KL, Ryan D, Vonderheid S. Maternal satisfaction with administering infant interventions in the neonatal intensive care unit. J Obstet Gynecol Neonatal Nurs. 2013; 42: 641 - 654.
dc.identifier.citedreferenceHolditch-Davis D, White-Traut RC, Levy JA, O’Shea TM, Geraldo V, David RJ. Maternally administered interventions for preterm infants in the NICU: effects on maternal psychological distress and mother–infant relationship. Infant Behav Dev. 2014; 37: 695 - 710.
dc.identifier.citedreferenceLee T-Y, Wang M-M, Lin K-C, Kao C-H. The effectiveness of early intervention on paternal stress for fathers of premature infants admitted to a neonatal intensive care unit. J Adv Nurs. 2013; 69: 1085 - 1095.
dc.working.doiNOen
dc.owningcollnameInterdisciplinary and Peer-Reviewed


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