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Inequities in Therapy for Infantile Spasms: A Call to Action
dc.contributor.authorBaumer, Fiona M.
dc.contributor.authorMytinger, John R.
dc.contributor.authorNeville, Kerri
dc.contributor.authorBriscoe Abath, Christina
dc.contributor.authorGutierrez, Camilo A.
dc.contributor.authorNumis, Adam L.
dc.contributor.authorHarini, Chellamani
dc.contributor.authorHe, Zihuai
dc.contributor.authorHussain, Shaun A.
dc.contributor.authorBerg, Anne T.
dc.contributor.authorChu, Catherine J.
dc.contributor.authorGaillard, William D.
dc.contributor.authorLoddenkemper, Tobias
dc.contributor.authorPasupuleti, Archana
dc.contributor.authorSamanta, Debopam
dc.contributor.authorSingh, Rani K.
dc.contributor.authorSinghal, Nilika S.
dc.contributor.authorWusthoff, Courtney J.
dc.contributor.authorWirrell, Elaine C.
dc.contributor.authorYozawitz, Elissa
dc.contributor.authorKnupp, Kelly G.
dc.contributor.authorShellhaas, Renée A.
dc.contributor.authorGrinspan, Zachary M.
dc.date.accessioned2022-07-05T21:00:05Z
dc.date.available2023-08-05 17:00:04en
dc.date.available2022-07-05T21:00:05Z
dc.date.issued2022-07
dc.identifier.citationBaumer, Fiona M.; Mytinger, John R.; Neville, Kerri; Briscoe Abath, Christina; Gutierrez, Camilo A.; Numis, Adam L.; Harini, Chellamani; He, Zihuai; Hussain, Shaun A.; Berg, Anne T.; Chu, Catherine J.; Gaillard, William D.; Loddenkemper, Tobias; Pasupuleti, Archana; Samanta, Debopam; Singh, Rani K.; Singhal, Nilika S.; Wusthoff, Courtney J.; Wirrell, Elaine C.; Yozawitz, Elissa; Knupp, Kelly G.; Shellhaas, Renée A. ; Grinspan, Zachary M. (2022). "Inequities in Therapy for Infantile Spasms: A Call to Action." Annals of Neurology 92(1): 32-44.
dc.identifier.issn0364-5134
dc.identifier.issn1531-8249
dc.identifier.urihttps://hdl.handle.net/2027.42/172939
dc.publisherJohn Wiley & Sons, Inc.
dc.titleInequities in Therapy for Infantile Spasms: A Call to Action
dc.typeArticle
dc.rights.robotsIndexNoFollow
dc.subject.hlbsecondlevelPsychiatry
dc.subject.hlbtoplevelHealth Sciences
dc.description.peerreviewedPeer Reviewed
dc.description.bitstreamurlhttp://deepblue.lib.umich.edu/bitstream/2027.42/172939/1/ana26363_am.pdf
dc.description.bitstreamurlhttp://deepblue.lib.umich.edu/bitstream/2027.42/172939/2/ana26363.pdf
dc.identifier.doi10.1002/ana.26363
dc.identifier.sourceAnnals of Neurology
dc.identifier.citedreferenceSaadi A, Himmelstein DU, Woolhandler S, Mejia NI. Racial disparities in neurologic health care access and utilization in the United States. Neurology 2017; 88: 2268 – 2275.
dc.identifier.citedreferenceMcClelland S, Curran CC, Davey CS, Okuyemi KS. Intractable pediatric temporal lobe epilepsy in the United States: examination of race, age, sex, and insurance status as factors predicting receipt of resective treatment. J Neurosurg 2007; 107: 469 – 473.
dc.identifier.citedreferenceKong W, Saber H, Marawar R, Basha M. Racial and ethnic trends in antiseizure medications trial enrolment: a systematic review using ClinicalTrials.gov. Epilepsy Res 2021; 173: 106613.
dc.identifier.citedreferenceGregerson CHY, Bakian AV, Wilkes J, et al. Disparities in pediatric epilepsy remission are associated with race and ethnicity. J Child Neurol 2019; 34: 928 – 936.
dc.identifier.citedreferenceJackson HN, Gadgil N, Pan IW, et al. Sociodemographic factors in pediatric epilepsy surgery. Pediatr Neurol 2020; 107: 71 – 76.
dc.identifier.citedreferenceBaca CB, Vickrey BG, Vassar S, et al. Time to pediatric epilepsy surgery is related to disease severity and nonclinical factors. Neurology 2013; 80: 1231 – 1239.
dc.identifier.citedreferenceHowell KB, Freeman JL, Mackay MT, et al. The severe epilepsy syndromes of infancy: a population-based study. Epilepsia 2021; 62: 358 – 370.
dc.identifier.citedreferenceMytinger JR, Vidaurre J, Moore-Clingenpeel M, et al. A reliable interictal EEG grading scale for children with infantile spasms - The 2021 BASED score. Epilepsy Res 2021; 173:106631.
dc.identifier.citedreferenceO’Callaghan FJK, Edwards SW, Alber FD, et al. Vigabatrin with hormonal treatment versus hormonal treatment alone (ICISS) for infantile spasms: 18-month outcomes of an open-label, randomised controlled trial. Lancet Child Adolesc Heal 2018; 2: 715 – 725.
dc.identifier.citedreferencePellock JM, Hrachovy R, Shinnar S, et al. Infantile spasms: a U.S. consensus report. Epilepsia 2010; 51: 2175 – 2189.
dc.identifier.citedreferenceGo CY, MacKay MT, Weiss SK, et al. Evidence-based guideline update: medical treatment of infantile spasms. Report of the guideline development Subcommittee of the American Academy of neurology and the practice Committee of the Child Neurology Society. Neurology 2012; 78: 1974 – 1980.
dc.identifier.citedreferenceHancock EC, Osborne JP, Edwards SW. Treatment of infantile spasms. Cochrane Database Syst Rev 2013;(6):CD001770.
dc.identifier.citedreferenceWilmshurst JM, Gaillard WD, Vinayan KP, et al. Summary of recommendations for the management of infantile seizures: task force report for the ILAE Commission of Pediatrics. Epilepsia 2015; 56: 1185 – 1,197.
dc.identifier.citedreferencePatel AD, Baca C, Franklin G, et al. Quality improvement in neurology: epilepsy quality measurement set 2017 update. Neurology 2018; 91: 829 – 836.
dc.identifier.citedreferenceGrinspan ZM, Mytinger JR, Baumer FM, et al. Crisis standard of care: Management of Infantile Spasms during COVID-19. Ann Neurol 2020; 88: 215 – 217.
dc.identifier.citedreferenceMytinger JR, Albert DVF, Twanow JD, et al. Compliance with standard therapies and remission rates after implementation of an infantile spasms management guideline. Pediatr Neurol 2020; 104: 23 – 29.
dc.identifier.citedreferenceKnupp KG, Leister E, Coryell J, et al. Response to second treatment after initial failed treatment in a multicenter prospective infantile spasms cohort. Epilepsia 2016; 57: 1834 – 1842.
dc.identifier.citedreferenceHarris PA, Taylor R, Minor BL, et al. The REDCap consortium: building an international community of software platform partners. J Biomed Inform 2019; 95:103208.
dc.identifier.citedreferenceKnupp KG, Coryell J, Nickels KC, et al. Response to treatment in a prospective national infantile spasms cohort. Ann Neurol 2016; 79: 475 – 484.
dc.identifier.citedreferenceWirrell EC, Shellhaas RA, Joshi C, et al. How should children with west syndrome be efficiently and accurately investigated? Results from the National Infantile Spasms Consortium. Epilepsia 2015; 56: 617 – 625.
dc.identifier.citedreferenceDemarest ST, Shellhaas RA, Gaillard WD, et al. The impact of hypsarrhythmia on infantile spasms treatment response: observational cohort study from the National Infantile Spasms Consortium. Epilepsia 2017; 58: 2098 – 2103.
dc.identifier.citedreferenceGrinspan ZM, Knupp KG, Patel AD, et al. Comparative effectiveness of initial treatment for infantile spasms in a contemporary US cohort. Neurology 2021; 97: e1217 – e1228.
dc.identifier.citedreferenceBurneo J, Jette N, Theodore W, et al. Disparities in epilepsy: report of a systematic review by the north American Commission of the International League against Epilepsy. Epilepsia 2009; 50: 2285 – 2295.
dc.identifier.citedreferenceAllen SE, Limdi N, Westrick ACA, et al. Racial disparities in temporal lobe epilepsy. Epilepsy Res 2018; 140: 56 – 60.
dc.identifier.citedreferenceDham B, Hunter K, Rincon F. The epidemiology of status epilepticus in the United States. Neurocrit Care 2014; 20: 476 – 483.
dc.identifier.citedreferenceCihan E, Hesdorffer DC, Brandsoy M, et al. Socioeconomic disparities in SUDEP in the US. Neurology 2020; 94: e2555 – e2566.
dc.identifier.citedreferenceJones CP. Levels of racism: a theoretic framework and a gardener’s tale. Am J Public Health 2000; 90: 1212 – 1215.
dc.identifier.citedreferenceNathan CL, Gutierrez C. FACETS of health disparities in epilepsy surgery and gaps that need to be addressed. 2018; 8: 340 – 345.
dc.identifier.citedreferenceFedak EM, Patel AD, Heyer GL, et al. Optimizing care with a standardized management protocol for patients with infantile spasms. J Child Neurol 2015; 30: 1340 – 1342.
dc.identifier.citedreferenceJames Willmore L, Abelson MB, Ben-Menachem E, et al. Vigabatrin: 2008 update. Epilepsia 2009; 50: 163 – 173.
dc.identifier.citedreferencePenner LA, Harper FWK, Dovidio JF, et al. The impact of black cancer patients’ race-related beliefs and attitudes on racially-discordant oncology interactions: a field study. Soc Sci Med 2017; 191: 99 – 108.
dc.identifier.citedreferenceJohnson RL, Roter D, Powe NR, Cooper LA. Patient race/ethnicity and quality of patient-physician communication during medical visits. Am J Public Health 2004; 94: 2084 – 2090.
dc.identifier.citedreferenceMaina IW, Belton TD, Ginzberg S, et al. A decade of studying implicit racial/ethnic bias in healthcare providers using the implicit association test. Soc Sci Med 2018; 199: 219 – 229.
dc.identifier.citedreferenceCooper LA, Roter DL, Johnson RL, et al. Patient-centered communication, ratings of care, and concordance of patient and physician race. Ann Intern Med 2003; 139: 907 – 915.
dc.identifier.citedreferenceTakeshita J, Wang S, Loren AW, et al. Association of Racial/ethnic and gender concordance between patients and physicians with patient experience ratings. JAMA Netw Open 2020; 3: e2024583.
dc.identifier.citedreferenceKang PB, Bale JF, Mintz M, et al. The child neurology clinical workforce in 2015: report of the AAP/CNS joint taskforce. Neurology 2016; 87: 1384 – 1392.
dc.identifier.citedreferenceHussain SA. Treatment of infantile spasms. Epilepsia open 2018; 3: 143 – 154.
dc.identifier.citedreferenceBegley C, Basu R, Reynolds T, et al. Sociodemographic disparities in epilepsy care: results from the Houston/New York City health care use and outcomes study. Epilepsia 2009; 50: 1040 – 1,050.
dc.identifier.citedreferenceSzaflarski JP, Bebin EM, Comi AM, et al. Long-term safety and treatment effects of cannabidiol in children and adults with treatment-resistant epilepsies: expanded access program results. Epilepsia 2018; 59: 1540 – 1,548.
dc.identifier.citedreferenceSzaflarski M, Wolfe JD, Tobias JGS, et al. Poverty, insurance, and region as predictors of epilepsy treatment among US adults. Epilepsy Behav 2020; 107: 107050.
dc.identifier.citedreferenceBautista R, Jain D. Detecting health disparities among Caucasians and African-Americans with epilepsy. Epilepsy Behav 2011; 20: 52 – 56.
dc.identifier.citedreferenceHamade Y, Palzer E, Helgeson E, et al. Persistent racial and ethnic disparities as a potential source of epilepsy surgery underutilization: analysis of large national datasets from 2006–2016. Epilepsy Res 2021; 176: 106725.
dc.identifier.citedreferenceSánchez Fernández I, Stephen C, Loddenkemper T. Disparities in epilepsy surgery in The United States of America. J Neurol 2017; 264: 1735 – 1745.
dc.identifier.citedreferenceBetjemann J, Thompson A, Santos-Sánchez C, et al. Distinguishing language and race disparities in epilepsy surgery. Epilepsy Behav 2013; 28: 444 – 449.
dc.identifier.citedreferenceThompson A, Ivey S, Lahiff M, Betjemann J. Delays in time to surgery for minorities with temporal lobe epilepsy. Epilepsia 2014; 55: 1339 – 1346.
dc.identifier.citedreferenceOkubo Y, Fallah A, Hayakawa I, et al. Trends in hospitalization and readmission for pediatric epilepsy and underutilization of epilepsy surgery in the United States. Seizure 2020; 80: 263 – 269.
dc.working.doiNOen
dc.owningcollnameInterdisciplinary and Peer-Reviewed


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