Items for developing revised classification criteria in systemic sclerosis: Results of a consensus exercise
Fransen, Jaap; Johnson, Sindhu R.; van den Hoogen, Frank; Baron, Murray; Allanore, Yannick; Carreira, Patricia E.; Czirják, László; Denton, Christopher P.; Distler, Oliver; Furst, Daniel E.; Gabrielli, Armando; Herrick, Ariane; Inanc, Murat; Kahaleh, Bashar; Kowal‐bielecka, Otylia; Medsger, Thomas A.; Mueller‐ladner, Ulf; Riemekasten, Gabriela; Sierakowski, Stanislaw; Valentini, Gabriele; Veale, Doug; Vonk, Madelon C.; Walker, Ulrich; Chung, Lorinda; Clements, Philip J.; Collier, David H.; Csuka, Mary E.; Jimenez, Sergio; Merkel, Peter A.; Seibold, James R.; Silver, Richard; Steen, Virginia; Tyndall, Alan; Matucci‐cerinic, Marco; Pope, Janet E.; Khanna, Dinesh
2012-03
Citation
Fransen, Jaap; Johnson, Sindhu R.; van den Hoogen, Frank; Baron, Murray; Allanore, Yannick; Carreira, Patricia E.; Czirják, László ; Denton, Christopher P.; Distler, Oliver; Furst, Daniel E.; Gabrielli, Armando; Herrick, Ariane; Inanc, Murat; Kahaleh, Bashar; Kowal‐bielecka, Otylia ; Medsger, Thomas A.; Mueller‐ladner, Ulf ; Riemekasten, Gabriela; Sierakowski, Stanislaw; Valentini, Gabriele; Veale, Doug; Vonk, Madelon C.; Walker, Ulrich; Chung, Lorinda; Clements, Philip J.; Collier, David H.; Csuka, Mary E.; Jimenez, Sergio; Merkel, Peter A.; Seibold, James R.; Silver, Richard; Steen, Virginia; Tyndall, Alan; Matucci‐cerinic, Marco ; Pope, Janet E.; Khanna, Dinesh (2012). "Items for developing revised classification criteria in systemic sclerosis: Results of a consensus exercise." Arthritis Care & Research 64(3): 351-357. <http://hdl.handle.net/2027.42/90249>
Abstract
Objective Classification criteria for systemic sclerosis (SSc; scleroderma) are being updated. Our objective was to select a set of items potentially useful for the classification of SSc using consensus procedures, including the Delphi and nominal group techniques (NGT). Methods Items were identified through 2 independent consensus exercises performed by the Scleroderma Clinical Trials Consortium and the European League Against Rheumatism Scleroderma Trials and Research Group. The first‐round items from both exercises were collated and redundancies were removed, leaving 168 items. A 3‐round Delphi exercise was performed using a 1–9 scale (where 1 = completely inappropriate and 9 = completely appropriate) and a consensus meeting using NGT was conducted. During the last Delphi round, the items were ranked on a 1–10 scale. Results In round 1, 106 experts rated the 168 items. Those with a median score of <4 were removed, resulting in a list of 102 items. In round 2, the items were again rated for appropriateness and subjected to a consensus meeting using NGT by European and North American SSc experts (n = 16), resulting in 23 items. In round 3, SSc experts (n = 26) then individually scored each of the 23 items in a last Delphi round using an appropriateness score ( 1–9 ) and ranking their 10 most appropriate items for the classification of SSc. Presence of skin thickening, SSc‐specific autoantibodies, abnormal nailfold capillary pattern, and Raynaud's phenomenon ranked highest in the final list that also included items indicating internal organ involvement. Conclusion The Delphi exercise and NGT resulted in a set of 23 items for the classification of SSc that will be assessed for their discriminative properties in a prospective study.Publisher
John Wiley & Sons, Inc.
ISSN
2151-464X 2151-4658
Other DOIs
PMID
22052558
Types
Article
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