Current prescription of prophylactic factor infusions and perceived adherence for children and adolescents with haemophilia: a survey of haemophilia healthcare professionals in the United States
dc.contributor.author | Thornburg, C. D. | en_US |
dc.contributor.author | Carpenter, S. | en_US |
dc.contributor.author | Zappa, S. | en_US |
dc.contributor.author | Munn, J. | en_US |
dc.contributor.author | Leissinger, C. | en_US |
dc.date.accessioned | 2012-07-12T17:24:10Z | |
dc.date.available | 2013-09-03T15:38:27Z | en_US |
dc.date.issued | 2012-07 | en_US |
dc.identifier.citation | Thornburg, C. D. ; Carpenter, S. ; Zappa, S. ; Munn, J. ; Leissinger, C. (2012). "Current prescription of prophylactic factor infusions and perceived adherence for children and adolescents with haemophilia: a survey of haemophilia healthcare professionals in the United States." Haemophilia 18(4). <http://hdl.handle.net/2027.42/92069> | en_US |
dc.identifier.issn | 1351-8216 | en_US |
dc.identifier.issn | 1365-2516 | en_US |
dc.identifier.uri | https://hdl.handle.net/2027.42/92069 | |
dc.publisher | Wiley Periodicals, Inc. | en_US |
dc.publisher | Blackwell Publishing Ltd | en_US |
dc.subject.other | Treatment Adherence | en_US |
dc.subject.other | Haemarthrosis | en_US |
dc.subject.other | Haemophilia | en_US |
dc.subject.other | Prophylactic Treatment | en_US |
dc.title | Current prescription of prophylactic factor infusions and perceived adherence for children and adolescents with haemophilia: a survey of haemophilia healthcare professionals in the United States | en_US |
dc.type | Article | en_US |
dc.rights.robots | IndexNoFollow | en_US |
dc.subject.hlbsecondlevel | Oncology and Hematology | en_US |
dc.subject.hlbtoplevel | Health Sciences | en_US |
dc.description.peerreviewed | Peer Reviewed | en_US |
dc.contributor.affiliationum | Department of Pediatrics, University of Michigan Medical Center, Ann Arbor, MI | en_US |
dc.contributor.affiliationother | Department of Medicine, Tulane University, New Orleans, LA, USA | en_US |
dc.contributor.affiliationother | Cook Children’s Medical Center, Forth Worth, TX | en_US |
dc.contributor.affiliationother | Department of Pediatrics, Children’s Mercy Hospital, Kansas City, MO; Department of Pediatrics | en_US |
dc.contributor.affiliationother | Department of Pediatrics, Duke University Medical Center, Durham, NC | en_US |
dc.identifier.pmid | 22335526 | en_US |
dc.description.bitstreamurl | http://deepblue.lib.umich.edu/bitstream/2027.42/92069/1/hae2756_sm_DataS1.pdf | |
dc.description.bitstreamurl | http://deepblue.lib.umich.edu/bitstream/2027.42/92069/2/hae2756.pdf | |
dc.identifier.doi | 10.1111/j.1365-2516.2012.02756.x | en_US |
dc.identifier.source | Haemophilia | en_US |
dc.identifier.citedreference | Duncan N, Kronenberger W, Roberson C, Shapiro A. VERITAS‐Pro: a new measure of adherence to prophylactic regimens in haemophilia. Haemophilia 2010; 16: 247 – 55. | en_US |
dc.identifier.citedreference | Butler RB, McClure W, Wulff K. Practice patterns in haemophilia A therapy – a survey of treatment centres in the United States. Haemophilia 2003; 9: 549 – 54. | en_US |
dc.identifier.citedreference | Kisker CT, Eisberg A, Schwartz B. Prophylaxis in factor IX deficiency product and patient variation. Haemophilia 2003; 9: 279 – 84. | en_US |
dc.identifier.citedreference | Nilsson I, Berntorp E, Lofqvist T, Pettersson H. Twenty‐five years’ experience of prophylactic treatment in severe haemophilia A and B. J Int Med 1992; 232: 25 – 32. | en_US |
dc.identifier.citedreference | Panicker J, Warrier I, Thomas R, Lusher JM. The overall effectiveness of prophylaxis in severe haemophilia. Haemophilia 2003; 9: 272 – 8. | en_US |
dc.identifier.citedreference | Fischer K, van der Bom JG, Molho P et al. Prophylactic versus on‐demand treatment strategies for severe haemophilia: a comparison of costs and long‐term outcome. Haemophilia 2002; 8: 745 – 52. | en_US |
dc.identifier.citedreference | van den Berg HM, Fischer K, van der Bom JG. Comparing outcomes of different treatment regimens for severe haemophilia. Haemophilia 2003; 9 ( Suppl 1 ): 27 – 31. | en_US |
dc.identifier.citedreference | Fischer K, Van Den Berg M. Prophylaxis for severe haemophilia: clinical and economical issues. Haemophilia 2003; 9: 376 – 81. | en_US |
dc.identifier.citedreference | Manco‐Johnson MJ, Abshire TC, Shapiro AD et al. Prophylaxis versus episodic treatment to prevent joint disease in boys with severe hemophilia. N Engl J Med 2007; 357: 535 – 44. | en_US |
dc.identifier.citedreference | Gringeri A, Lundin B, Mackensen SV, Mantovani L, Mannucci PM. A randomized clinical trial of prophylaxis in children with hemophilia A (the ESPRIT Study). J Thromb Haemost 2011; 9: 700 – 10. | en_US |
dc.identifier.citedreference | Thornburg CD. Physicians’ perceptions of adherence to prophylactic clotting factor infusions. Haemophilia 2008; 14: 25 – 9. | en_US |
dc.identifier.citedreference | Bosworth H. Medication treatment adherence. In: Bosworth H, Oddone E, Weinberger M eds. Patient Treatment Adherence: Concepts, Interventions, and Measurement. Mahweh: Lawrence Erlbaum Associates, Publishers, 2006: 158. | en_US |
dc.identifier.citedreference | Haynes RB, Sackett DL, Gibson ES et al. Improvement of medication compliance in uncontrolled hypertension. Lancet 1976; 1: 1265 – 8. | en_US |
dc.identifier.citedreference | Psaty BM, Koepsell TD, Wagner EH, LoGerfo JP, Inui TS. The relative risk of incident coronary heart disease associated with recently stopping the use of beta‐blockers. JAMA 1990; 263: 1653 – 7. | en_US |
dc.identifier.citedreference | Osterberg L, Blaschke T. Adherence to medication. N Engl J Med 2005; 353: 487 – 97. | en_US |
dc.identifier.citedreference | Centers for Disease Control and Prevention (CDC) HTC staff database. Available at http://www2a.cdc.gov/ncbddd/htcweb/udc_report/udc_report.asp. Accessed 2010. | en_US |
dc.identifier.citedreference | Feldman BM, Pai M, Rivard GE et al. Tailored prophylaxis in severe hemophilia A: interim results from the first 5 years of the Canadian Hemophilia Primary Prophylaxis Study. J Thromb Haemost 2006; 4: 1228 – 36. | en_US |
dc.identifier.citedreference | Kurnik K, Bidlingmaier C, Engl W, Chehadeh H, Reipert B, Auerswald G. New early prophylaxis regimen that avoids immunological danger signals can reduce FVIII inhibitor development. Haemophilia 2010; 16: 256 – 62. | en_US |
dc.identifier.citedreference | Universal Data Collection Project. Available at https://www2a.cdc.gov/ncbddd/htcweb/Main.asp. Accessed 2002, 2006 and 2010. | en_US |
dc.identifier.citedreference | Chan AK, Decker K, Warner M. Adherence with haemophilia treatments: a survey of haemophilia healthcare professionals in Canada. Haemophilia 2011; 17: 816 – 7. | en_US |
dc.identifier.citedreference | Fischer K, Valentino L, Ljung R, Blanchette V. Prophylaxis for severe haemophilia: clinical challenges in the absence as well as in the presence of inhibitors. Haemophilia 2008; 14 ( Suppl 3 ): 196 – 201. | en_US |
dc.identifier.citedreference | Lindvall K, Colstrup L, Wollter IM et al. Compliance with treatment and understanding of own disease in patients with severe and moderate haemophilia. Haemophilia 2006; 12: 47 – 51. | en_US |
dc.identifier.citedreference | Richards M, Altisent C, Batorova A et al. Should prophylaxis be used in adolescent and adult patients with severe haemophilia? An European survey of practice and outcome data. Haemophilia 2007; 13: 473 – 9. | en_US |
dc.identifier.citedreference | Walsh CE, Valentino LA. Factor VIII prophylaxis for adult patients with severe haemophilia A: results of a US survey of attitudes and practices. Haemophilia 2009; 15: 1014 – 21. | en_US |
dc.identifier.citedreference | Bosworth HB, Granger BB, Mendys P et al. Medication adherence: a call for action. Am Heart J 2011; 162: 412 – 24. | en_US |
dc.identifier.citedreference | du Treil S, Rice J, Leissinger CA. Quantifying adherence to treatment and its relationship to quality of life in a well‐characterized haemophilia population. Haemophilia 2007; 13: 493 – 501. | en_US |
dc.identifier.citedreference | Ragni MV, Fogarty PJ, Josephson NC, Neff AT, Raffini LJ, Kessler CM. Survey of current prophylaxis practices and bleeding characteristics of children with severe haemophilia A in US haemophilia treatment centres. Haemophilia 2012; 18: 63 – 8. | en_US |
dc.owningcollname | Interdisciplinary and Peer-Reviewed |
Files in this item
Remediation of Harmful Language
The University of Michigan Library aims to describe library materials in a way that respects the people and communities who create, use, and are represented in our collections. Report harmful or offensive language in catalog records, finding aids, or elsewhere in our collections anonymously through our metadata feedback form. More information at Remediation of Harmful Language.
Accessibility
If you are unable to use this file in its current format, please select the Contact Us link and we can modify it to make it more accessible to you.