View Item 

Show simple item record

The Michigan BioTrust for Health: Using Dried Bloodspots for Research to Benefit the Community While Respecting the Individual
dc.contributor.authorChrysler, Deniseen_US
dc.contributor.authorMcGee, Harryen_US
dc.contributor.authorBach, Janiceen_US
dc.contributor.authorGoldman, Eden_US
dc.contributor.authorJacobson, Peter D.en_US
dc.date.accessioned2013-07-08T17:45:38Z
dc.date.available2013-07-08T17:45:38Z
dc.date.issued2011-03en_US
dc.identifier.citationChrysler, Denise; McGee, Harry; Bach, Janice; Goldman, Ed; Jacobson, Peter D. (2011). "The Michigan BioTrust for Health: Using Dried Bloodspots for Research to Benefit the Community While Respecting the Individual." The Journal of Law, Medicine & Ethics 39. <http://hdl.handle.net/2027.42/98798>en_US
dc.identifier.issn1073-1105en_US
dc.identifier.issn1748-720Xen_US
dc.identifier.urihttps://hdl.handle.net/2027.42/98798
dc.publisherBlackwell Publishing Ltden_US
dc.publisherWiley Periodicals, Inc.en_US
dc.titleThe Michigan BioTrust for Health: Using Dried Bloodspots for Research to Benefit the Community While Respecting the Individualen_US
dc.typeArticleen_US
dc.rights.robotsIndexNoFollowen_US
dc.subject.hlbsecondlevelLaw and Legal Studiesen_US
dc.subject.hlbsecondlevelMedicine (General)
dc.subject.hlbtoplevelGovernment, Politics and Lawen_US
dc.subject.hlbtoplevelHealth Sciences
dc.description.peerreviewedPeer Revieweden_US
dc.contributor.affiliationumAssociate Professor in the University of Michigan Department of ObGyn and President of the Michigan Neonatal Biobank Board of Directorsen_US
dc.contributor.affiliationumDirector of the Center for Law, Ethics, and Health at the University of Michigan School of Public Health.en_US
dc.contributor.affiliationotherProvided legal support for the Michigan BioTrust for Health initiative as the Public Health Legal Director of the Public Health Administration at Michigan Department of Community Healthen_US
dc.contributor.affiliationotherAssistant Professor in Michigan State University's Office of Regulatory Affairs Human Research Protection Program and chairs the Social/Behavioral IRBen_US
dc.contributor.affiliationotherState Genetics Coordinator and Manager of the Genomics and Genetic Disorders Section at Michigan Department of Community Healthen_US
dc.identifier.pmid21309908en_US
dc.description.bitstreamurlhttp://deepblue.lib.umich.edu/bitstream/2027.42/98798/1/j.1748-720X.2011.00577.x.pdf
dc.identifier.doi10.1111/j.1748-720X.2011.00577.xen_US
dc.identifier.sourceThe Journal of Law, Medicine & Ethicsen_US
dc.identifier.citedreference45 C.F.R. § 46.116 (8). (2009).en_US
dc.identifier.citedreference45 C.F.R. Part 46 (2009); 21 C.F.R. Part 50 (2010); 21 C.F.R. Part 56 (2010).en_US
dc.identifier.citedreferenceFor more information about Michigan's newborn screening program, visit < http://www.michigan.gov/newbornscreening > (last visited December 15, 2010).en_US
dc.identifier.citedreferenceMichigan Public Health Code, M.C.L. 333.5431(7)(b).en_US
dc.identifier.citedreferenceD. E. Winickoff and R. N. Winickoff, “The Charitable Trust as a Model for Genomic Biobanks,” New England Journal of Medicine 349 ( 2003 ): 1180 – 1184, available at < http://www.nejm.org/doi/full/10.1056/NEJMsb030036 > (last visited December 15, 2010).en_US
dc.identifier.citedreferenceM.C.L.333.1101 et seq..en_US
dc.identifier.citedreferenceM.C.L. 333.5431(7)(b).en_US
dc.identifier.citedreferenceM.C.L. 333.2226(a); MCL 333.2611; M.C.L. 333.2621; M.C.L. 333.5412(2).en_US
dc.identifier.citedreferenceMoore v California Regents, 51 Cal. 3d 120 (1990), available at < http://www.eejlaw.com/materials/Moore_v_Regents_T08.pdf >.en_US
dc.identifier.citedreferenceGreenberg v Miami Children's Hosp, 264 F. Supp.2d 1064 S.D. Fla. (2003), excerpts from opinion available at < http://indylaw.indiana.edu/instructors/orentlicher/healthlw/Greenberg.htm >.en_US
dc.identifier.citedreferenceWashington University v Catalona, 490 F. 3d 667 8th Cir. (2006), available at < http://prostatecure.wustl.edu/pdf/8thCircuitOpinion.pdf > (last visited December 15, 2010).en_US
dc.identifier.citedreference“Michigan Commission on Genetic Privacy and Progress Final Report and Recommendations,” February 1999, available at < http://www.michigan.gov/documents/GeneticsReport_11649_7.pdf > (last visited December 15, 2010).en_US
dc.identifier.citedreferenceMichigan's Community Values Advisory Board includes representatives from the following organizations/interests: American Cancer Society (Great Lakes Division), American Civil Liberties Union of Michigan, Arab Community Center for Economic and Social Services, Cristo Rey, Faith Access to Community Economic Development, Inter‐Tribal Council, Michigan Association of Genetic Counselors, Health Law Attorney, March of Dimes (Michigan Chapter), MichBio, Michigan Council for Maternal & Child Health, Michigan Developmental Disabilities Council, Michigan Environmental Council, Michigan Minority Health Coalition, Michigan Health and Hospital Association, Michigan Osteopathic Association, National Alliance on Mental Illness Michigan, Newborn Screening Parent.en_US
dc.identifier.citedreferenceSee Michigan BioTrust for Health, available at < http://www.michigan.gov/biotrust > (last visited December 15, 2010).en_US
dc.identifier.citedreferenceSee Winickoff and Winickoff, supra note 4, quoting, National Research Council, Committee on Genome Diversity, Evaluating Human Genetic Diversity (Washington, D.C.: National Academy Press, 1997).en_US
dc.identifier.citedreferenceThe Belmont Report, Ethical Principles and Guidelines for the Protection of Human Subjects of Research, The National Commission for the Protection of Human Subjects of Biomedical and Behavioral Research (April 18, 1979), available at < http://www.hhs.gov/ohrp/humansubjects/guidance/Belmont.htm > (last visited December 15, 2010).en_US
dc.identifier.citedreferenceSee Winickoff and Winickoff, supra note 4.en_US
dc.identifier.citedreferenceFor more information about Michigan Neonatal Biobank, visit < http://www.mnbb.org > (last visited December 15, 2010).en_US
dc.owningcollnameInterdisciplinary and Peer-Reviewed


Files in this item

Name:
j.1748-720X.2011.00577.x.pdf
Size:
147.0KB
Format:
PDF
View/Open

Show simple item record

Remediation of Harmful Language

The University of Michigan Library aims to describe library materials in a way that respects the people and communities who create, use, and are represented in our collections. Report harmful or offensive language in catalog records, finding aids, or elsewhere in our collections anonymously through our metadata feedback form. More information at Remediation of Harmful Language.

Accessibility

If you are unable to use this file in its current format, please select the Contact Us link and we can modify it to make it more accessible to you.